Probiotic question

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Red_34
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   Posted 12/30/2007 1:21 PM (GMT -7)   
I was wondering...I know that we should all be on probiotics because it helps create a better gut environment.  But what exactly does a probiotic do in regard to the symptoms?  Do you find that it helps with your symptoms and if so, what does it help?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
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jujub
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Date Joined Mar 2003
Total Posts : 10405
   Posted 12/30/2007 2:37 PM (GMT -7)   
I think I seem to have less cramping and flatulence when on probiotics. And some studies have shown that they promote maintenance of remissions.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade.
In remission since April, 2006. Remicade has been my wonder drug.
 


Mamas Boys
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Date Joined Oct 2005
Total Posts : 1460
   Posted 12/30/2007 4:28 PM (GMT -7)   
Helps with the gas pain.   I notice the difference if I've been off it for a few days if I run out.

KTM


ledaebel
Regular Member


Date Joined Jul 2006
Total Posts : 339
   Posted 12/30/2007 4:59 PM (GMT -7)   
I'm not sure exactly what it does, but I've had this mental picture of probiotics killing off the bad bscteria that has been eating away at my gut and allowing it to heal.
  • LINDA
         
Prescriptions: Lialda (on a study) asacol, hycosamine, protonix, synthroid, zyrtec, avalide, nasocort, Miacalcin spray and Trazadone for sleep.
OTCs:  Usana multivitamins and multiminerals, Usana Procosa, Usana Mega Antioxidants, Omega 3, Vit. E,  Healthy trinity probiotics, Calcium Citrate


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/30/2007 5:00 PM (GMT -7)   
I wonder if I am the only person with UC who seems to get worse on Probiotics?  They seemed to give me more cramping and gas than not taking them... UGGHHH

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade,ulcer shrunk in 3 months August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis? & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Back to Prednisone again :( for joint pain


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 12/30/2007 5:18 PM (GMT -7)   
PrincessColon: When I first started a probiotic, I get the extra gas and cramping. But then, things get better within a week or two. Which ones have you tried? How long did you try them for? I found that I had to start small and increase - or I got MAJOR gas pains!!! Also, I tried a probiotic with FOS and the gas NEVER went away!

I noticed firmer stools when I started the probiotic. Now that my gut is teatering on the "fence" between flare and no-flare, maybe I should up my dose and see if the firmness comes back....
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


princesscolon
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Date Joined Apr 2006
Total Posts : 733
   Posted 12/30/2007 5:37 PM (GMT -7)   
I took Acidophilis pearls or something.  Also another one I can't remember the name of.  I know I tried the pearls for at least 3 weeks and I couldn't stand them anymore.

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade,ulcer shrunk in 3 months August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis? & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Back to Prednisone again :( for joint pain


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 12/30/2007 5:40 PM (GMT -7)   
I use culturelle.  1 cap 2x daily.  Works like a charm.

KTM


Rio in Maryland
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Date Joined Nov 2007
Total Posts : 891
   Posted 12/30/2007 5:45 PM (GMT -7)   
For some reason my symptoms get worse when I'm on probiotics - looser BMs.  I tried VSL#3 for 3 weeks and had to stop and recently tried 'Nature's Way' Primadophilus Reuteri for a few weeks and got off that too.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone 60mg - taper.

Post Edited (Rio in Maryland) : 12/30/2007 5:50:16 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/30/2007 5:52 PM (GMT -7)   
For me they have helped with bloating and less frequency issues...

Rio, you may have to give probiotics a good long run before noticing the improvements...you may just be experiancing symptoms of "dye-off" when you're taking them, but that should resolve itself in time.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


MoonShadow
Regular Member


Date Joined Dec 2007
Total Posts : 52
   Posted 12/30/2007 5:53 PM (GMT -7)   

I personally believe that everyone should (at least) try probiotics for their UC.

 

I am not at the moment because I ran out months ago and have not had chance to buy more – thank you for reminding me.

 

Time and time again, I have heard or read, that people say they really start to feel well once they start taking probiotics.

 

I started on them in 2005 and have taken them off and on ever since (my local store often sells out and takes ages to replace – that is why my consumption has been sporadic)

 

My only suggestion is: get a brand that is from a “practitioner only range”, rather than buying off shelf. It may mean you have to make an appointment with a naturopath first but these professionals normally have the very best brands available.

 

I believe it basically assists in the management of the disease (i.e.) assists in relieving associated symptoms.


MoonShadow.

Australia.

Female 37.

Sick since 1998 – finally diagnosed 2003.

No drugs (last drugs were taken in 2005).

Healing myself thorough diet & natural methods.

Using plant derived MultiGest Enzymes capsules as part of diet.

 

Feeling fantastic!

Post Edited (MoonShadow) : 1/1/2008 4:47:01 PM (GMT-7)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/30/2007 5:58 PM (GMT -7)   
As with everything, we all seem to be different in this area. VSL #3, which is the one tested and shown to be effective, also gave me horrible gas, even after three months. Now I'm taking Primadophilus Reuteri, and it seems to help.

I keep saying "seems to" because it could just be a placebo effect, I don't know. I just know I feel better when I take it, so I keep taking it.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade.
In remission since April, 2006. Remicade has been my wonder drug.
 


MoonShadow
Regular Member


Date Joined Dec 2007
Total Posts : 52
   Posted 12/30/2007 6:12 PM (GMT -7)   

Sorry I forgot to add (in reply to the other posts):

 

When I first started taking them, they took a while to “get into my system”. I started to notice a difference after a week or two but it took three months to really get into my body and settle into a routine.

 

Again, I can only suggest getting the best brand you can. When I say best brand, I mean on the advice of an independent naturopath or independent health professional, not on the advice of staff at the local health food / vitamin shop. Many of these staff work on commissions to flog a certain product, so you may not be getting the best brand or the best advice available.

 

In the past, when I have brought vitamins on advice on the shop staff, I have often ended up with an inferior brand.

 

I obviously don’t know your backgrounds, so I don’t want to assume anything but I am just wondering if the brand had something to do with it.

 

From my understanding, I believe the amount of organisms in each capsule is of the upmost importance. The one I take contains 20 billion.

 

For Australians, I highly recommend the brand Metagenics, which is available as a practitioner only range in tablet or powder form. I have tried a couple of brands and found this one to be excellent.

 

 


MoonShadow.

Australia.

Female 37.

Sick since 1998 – finally diagnosed 2003.

No drugs (last drugs were taken in 2005).

Healing myself thorough diet & natural methods.

Using plant derived MultiGest Enzymes capsules as part of diet.

 

Feeling fantastic!


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 12/30/2007 8:26 PM (GMT -7)   
i wish every time an antibiotic is prescribed a probiotic went with it, maybe, just maybe
a lot of people would not have damaged guts, bladders, and whatever else happens to mucosa linings...
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed tme


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 12/30/2007 8:57 PM (GMT -7)   
Brown Cow nonfat yogurt seems to have the cultures I need. The 32 oz. size plain or vanilla costs $3.29-$5.29 in my area. It is generally much harder to find than other brands, especially in the large size. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/30/2007 9:44 PM (GMT -7)   
I first tried VSL and it gave me horrible gas pains too so I stopped them. Then I went to some other probiotic which did the same thing. But now I'm on Pro-Bio and I didn't have any gas pains or anything and I thought I noticed an improvement of symptoms but then again, it was also during a time in which I started an anti-fungal for a yeast infection. So I don't know if the better days were from the probiotic or the anti-fungal. I seem to be doing ok still so I was just wondering exactly how the probiotic helps with symptoms in others.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


SwollenColon
Regular Member


Date Joined Nov 2006
Total Posts : 190
   Posted 12/30/2007 10:25 PM (GMT -7)   
"Brown Cow nonfat yogurt seems to have the cultures I need. The 32 oz. size plain or vanilla costs $3.29-$5.29 in my area. It is generally much harder to find than other brands, especially in the large size. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)"

Brown Cow yogurt is one of the most incredible foods I've ever put into my mouth. If there is a bright side to having UC, it's the discovery of Brown Cow yogurt. I have to drive over an hour 1 way to get it, but man I really don't mind.

MoonShadow
Regular Member


Date Joined Dec 2007
Total Posts : 52
   Posted 12/31/2007 3:33 AM (GMT -7)   
If I could eat (Brown Cow) non-fat yogurt I would.

Sadly I can’t as (as well as many other UC sufferers) I am lactose intolerant.

Boo Hoo!

MoonShadow.

Australia.

Female 37.

Sick since 1998 – finally diagnosed 2003.

No drugs (last drugs were taken in 2005).

Healing myself thorough diet & natural methods.

Using plant derived MultiGest Enzymes capsules as part of diet.

 

Feeling fantastic!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 12/31/2007 7:17 AM (GMT -7)   
Moon Shadow, have you tried yogurt lately? I'm lactose intolerant too but I have no issue whatsoever with yogurt.

Hmmm now you all are gonna make me have a craving for Brown Cow! And I've never even tried it before! lol
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/31/2007 8:33 AM (GMT -7)   
I can get Brown Cow at about six places within five miles of my home. Unfortunately, I'm not very fond of yogurt. :-(
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade.
In remission since April, 2006. Remicade has been my wonder drug.
 


gdfairy
Regular Member


Date Joined Jun 2007
Total Posts : 89
   Posted 12/31/2007 11:50 AM (GMT -7)   
IMO, probiotics must be great for people with diarrhea.  No matter what probiotic I've tried, it constipates me, but at the same time it seems to curtain the gas and spasms.  So, either I'm constipated or have gas and spasms.  Can't win.  I'm wondering if there is a certain strain(s) I can take that's not constipating.


Left sided UC 3 years
Current Meds: Lialda 3 in the Morning
Rowasa when needed or Canasa
Multi Vitamin/Mineral
Fish oil
Biotin


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 12/31/2007 12:32 PM (GMT -7)   

pb4 thanks for the follow up. 

Unfortunately, I haven't been able to give the probiotics more time (more than 3-4 weeks) to work as both times, with my sympoms getting significantly worse after using them over 3-4 weeks, I have actually had to get onto prednisone to calm things back down. Then again, my symptoms could have been worsening for reasons other than the probiotics and maybe the strains I tried were just too strong for me.


Rio, 31 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprene 175mg, Prednisone 60mg - taper.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/31/2007 12:40 PM (GMT -7)   
That really sucks Rio, maybe try the powdered formula of primadophilus reuteri, that way you can be in total control of taking a very small amount and slowly increasing it because probiotics are very important for us IBDers (IBSers too).

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


MoonShadow
Regular Member


Date Joined Dec 2007
Total Posts : 52
   Posted 12/31/2007 4:09 PM (GMT -7)   
Red_34 said...
Moon Shadow, have you tried yogurt lately? I'm lactose intolerant too but I have no issue whatsoever with yogurt.

 

I last tried it about six months ago. At first it seemed to be ok, so I ate it every morning for about a week. Then I started to get a reaction. Maybe I ate too much of it. Maybe if I just have it occasionally it will be fine. With a lot of dairy products I get this really weird after-taste in my mouth. It reminds me of cow pats (not that I have eaten a cow pat) this strange taste has only occurred since I have had UC.


MoonShadow.

Australia.

Female 37.

Sick since 1998 – finally diagnosed 2003.

No drugs (last drugs were taken in 2005).

Healing myself thorough diet & natural methods.

Using plant derived MultiGest Enzymes capsules as part of diet.

 

Feeling fantastic!


MoonShadow
Regular Member


Date Joined Dec 2007
Total Posts : 52
   Posted 12/31/2007 4:14 PM (GMT -7)   
Rio in Maryland said...

pb4 thanks for the follow up. 

Unfortunately, I haven't been able to give the probiotics more time (more than 3-4 weeks) to work as both times, with my sympoms getting significantly worse after using them over 3-4 weeks, I have actually had to get onto prednisone to calm things back down. Then again, my symptoms could have been worsening for reasons other than the probiotics and maybe the strains I tried were just too strong for me.

 

I have just had a thought, I had completely forgotten about this:

 

I didn’t react very well to the powder form.

 

I was fine once I swapped to the tablet form.


MoonShadow.

Australia.

Female 37.

Sick since 1998 – finally diagnosed 2003.

No drugs (last drugs were taken in 2005).

Healing myself thorough diet & natural methods.

Using plant derived MultiGest Enzymes capsules as part of diet.

 

Feeling fantastic!

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