Symptoms not common.

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Katie Rose
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 12/31/2007 3:06 PM (GMT -7)   
Hi All,

I have been diagnosed with UC for about 14 years. My symptoms have always been unusual in the way that I don't have frequent bowel movements, and rarely diarrhea. If anything mine are the opposite. I am usually constipated?? It seems that when I do go it does'nt amount too much. I never seem to get relief. Is there anyone out there with the same experience? I take Asacol 3 tabs, 3 X's a day. It does'nt seem to help much, in fact sometimes I will stop taking it for month or so, because it just does'nt seem to do much good. Then I'll go back on and things will get better again for a little while. Thanks in advance for your input/suggestions/anything.

GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 12/31/2007 6:45 PM (GMT -7)   
Hi Katie, and welcome to our forum!
I believer there is a form of UC called Constipation UC. I don't think it's terribly common but I have heard people on here discuss it. I don't have that form, so unfortunately I can't really help you, maybe start a new post called "constipation and UC?" and some of those people will respond.
Good Luck!
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
Eleventh Remicade infusion End of January


laurar
Veteran Member


Date Joined Jan 2006
Total Posts : 730
   Posted 12/31/2007 7:40 PM (GMT -7)   
Do you take a probiotic? That's helped me get more regular. Also, taking digestive enzymes with every meal has helped alleviate constipation for me as well.
Diagnosed Ulcerative Pancolitis
25mg Imuran

Probiotics
Fish Oil
Vitamin C
Slippery Elm
TURMERIC!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 12/31/2007 8:16 PM (GMT -7)   
I know that constipation cna be quite common with having CD but I've never really heard about it with UC , fo course nothing's written in stone is it.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 12/31/2007 8:38 PM (GMT -7)   
I got really constipated before having my first flare ever. I have heard of constipation being one of the first signs of a flare. Have you tried taking a fiber supplement every day? Maybe that would help?
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/31/2007 8:57 PM (GMT -7)   
I go from one to the other, extreme constipation to extreme diarrhea. I thought it was common in UC? At one of my recent GI visits, I was complaining how hard it can be to pass stool for me. He said that it could be because of all the inflammation throughout. He recommended more fiber.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade,ulcer shrunk in 3 months August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis? & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Back to Prednisone again :( for joint pain


quincy
Elite Member


Date Joined May 2003
Total Posts : 29848
   Posted 1/1/2008 1:41 AM (GMT -7)   
Katie Rose..welcome to the forum.

Where in the colon is your UC diagnosed..throughout or limited?

quincy
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Katie Rose
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 1/1/2008 1:32 PM (GMT -7)   
Thanks for the warm welcome everyone! I greatly appreciate all the feedback.


GardenerJames: Constipation UC?? I will definitely do more research regarding it. I've talked with my GI Doc about it several times. I get the impression from him that it is normal?! But when I do talk with other's that have it, they always relate the fact of their sudden urge to go and diarrhea, so I'm contantly questioning whether I have been properly diagnosed(which can lead to a kind of denial :)) I have had about 6 colonoscopys over the last 14 years, and, my GI Doc assures me that I have UC but...... I'll check it out, thanks a bunch.



Laurar: I have tried Probiotics in the past (Primal Defense $50) and it did'nt seem to help very much. :( At least not enough that I kept them up. I've also tried fish oil to no avail, and Forvia as well. I find that if I don't see much of a change after a couple months, I get tired taking so many pills and supplements that I usually give up. Thanks for the feedback, this is great.

Pb4: You are so right about "nothing being written in stone". I've been trying to figure this disease out for a while now!!! Love the joke...LOL :)

Sara14: Wow diagnosed at 23?! Not fun at all. I was 30 when I was diagnosed. You know, I have never tried a fiber supplement, because I thought that fiber would make the UC worse. You have given me some food for thought. I will go out and pick some up today and give it a try. Certainly can't hurt! Thanks much

Princesscolon: Yes my Doctor has told me that as well. I have had such bad cramps in the past when trying to pass a stool that I have equated it to childbirth??!!! Fortunately, that has not occurred in some time. :) I did have a flare up in April 07 and was put on Prednisone for about 6 weeks. Boy, did it do the trick, seemed to be a cure all. I will definitely try a fiber supplement, thanks for the advice.

Quincy: My UC diagnosis is on the lower left side, and is limited. The last colonoscopy I had my Doctor advised me that the disease had not progressed, and actually looked a little better since the one prior. If it was'nt for the constipation and the feeling of never quite having any relief after going to the restroom, I would be feeling really good. I love your Doc's logic.


Happy New Year to you all, thanks for all your feedback. It helps to know your not alone out here. :)

quincy
Elite Member


Date Joined May 2003
Total Posts : 29848
   Posted 1/1/2008 3:07 PM (GMT -7)   
Hi...this is just a general soapbox info session/rant/preach....

The inflammation location mostly determines the symptoms. Since UC inflammation of a flare starts at the lowest part of the rectum...symptoms will not be as noticable because they aren't usually the norm that patients have labelled as a flare. The symptoms could be bloating, stomach discomfort, excess gas felt a lot in the rectum, constipation (subjective) with smaller, harder or scant bms. More mucus can be seen around the bms or even itself during evacuation.

As the inflammation continues (either upward or remaining depending on the limitation of the UC), the symptoms can change to more mucus and gas, pastsy, pencil/thin stools, more cramping, frequency, urgency and pain upon bms.

High in the rectum inflammation can start to present looser stools, sometimes somewhat less gas but more cramping, urgency, frequency, and that nice razor feeling upon bms...yeeow!

As the inflammation continues upward, the stool tends to be evacuated more quickly...so, a tendency for diarrhea, spasming....etc seems to be noted. I have less gas with diarrhea but more spasming. Definitely the raw butt syndrome comes into play and then there are other discomforts to deal with.

As the colon heals, it's usually from top to bottom based on the meds one takes it seems.....so, the symptoms will tend to go backwards with constipation and more discomfort of the stomach and with gas.

Rectal meds are really important from my perspective (and experience)...regardless of how high the inflammation goes because the rectum will always be involved.

I've not heard of constipation UC...but it makes sense if the inflammation site is very low and remains limited. That form is extremely difficult to deal with from what I've read.

Some with low limited site inflamation can also have cecum involvement....and if one's case is very stubborn and only dealt with rectal meds, the cecum gets left out of the treatment. If it's inflamed, the rectum will continue to be no matter how many rectal meds are given.

Not that this is written in stone (as per pb4..there are always exceptions or misdiagnosis or other things going on as well)....but there are some basics of UC's pattern of inflammation that seem to continue to be left out of the equation. It might help to realise that when starting a flare so that it can be treated early.

I haven't mentioned bleeding, because although it's a classic symptom, it shouldn't be the first one we wait to see. Once it starts to happen, the fragility (friability) of the tissue is in a progressed state.
Many doctors also use bleeding as a criteria of importance and ignore patients until they get to that point to take it seriously. A huge neglect.

While my points may not be taken seriously ....they are about as basic as can be regarding urgency toward early treatment. And in early treatment, patients have their own freedom to increase and decrease according to needs. That gives freedom and lowers the distress. The bonus of it is that their UC has less potential to spread upward.....and flares should be less serious as the years go by.

Again, not that it's written in stone, but it's a good chance of having things (flare/remission process) still going well looooooooooong after the predetermined 10 year mark of doom and gloom some doctors preach/threaten.

OK....soapbox put away.

quincy


*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 1/1/2008 3:10:08 PM (GMT-7)


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 1/1/2008 4:18 PM (GMT -7)   
Interesting stuff. I have distal UC, 40 cm in and limited up to the top of the left side. I find that if I am not flaring, I am constipated, so it is either one or the other. And when not flaring, I still have great discomfort and urgency to have a movement even though all tests show the inflammation is gone, it is as if the site that becomes inflamed is always irritable or that some hypersensitive nerves have developed there. Psyllium helps in both cases, but I certainly never have what you could call "normal" bowel function.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/1/2008 4:39 PM (GMT -7)   
It wasn't until the past year or so that I've been having the constipation problem. Before then, I was textbook when it came to symptoms of Uc. I contributed my constipation to inflammation though because once the inflammation was under control, things sort of equalized.

Yes, constipation is not the norm for Uc but it's not unheard of either. Oh and btw, welcome to Healingwell :)
 @--->--SHERRY--<---@
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~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
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Katie Rose
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 1/2/2008 7:50 PM (GMT -7)   
Quincy: Thanks for your soapbox (as you put it). :) I found it all very helpful, makes sense to me. This forum is awesome!!!
PC

Female 45 years old.
Diagnosed with UC since 1994 Lower left side
Currently taking a multi vitamin and Asacol 3 tabs 3 x's a day.
Tried: Probiotics, Fish oil, Prednisone, Rowasa & Hydrocortisone Enemas, Sulfasalazine


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 1/2/2008 9:31 PM (GMT -7)   

Quincy,

My doctors could never figure out my UC. It didn't start in the rectum, but began further up my colon, and then cleared again. My colon was kinda like tiles on a floor all joining together the way they should to start the perfect pattern, then being interrupted with mismatched tiles (my ulcerations) then the tiles coming back together again to continue once again a perfect pattern. Do most people with UC have it begin in the rectum and work up? Just wondering. I am in total agreement with you on the rectal meds. They gave me my life back.

Kim


quincy
Elite Member


Date Joined May 2003
Total Posts : 29848
   Posted 1/3/2008 1:10 AM (GMT -7)   
Hi Kim...Apparently, (but to save my butt here) as others have put it...there always seem to be rare exceptions. There are also lots of misdiagnosis where patients are put in a category that fits it the best. Strange they put you in the UC one with NO rectal involvement..at least CD would have fit it much better. There are also other bowel diseases that mimic UC...so, maybe in the future, your symptoms will eventually present in a more classic form.

Strange as well that the doc gave you rectal meds (although I know they go higher than the rectum..so I guess it's not totally strange)....where in the colon did your UC start by the way?

quincy


*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 29848
   Posted 1/3/2008 1:12 AM (GMT -7)   
KR... :-)

q


*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/3/2008 5:39 AM (GMT -7)   

Constipation based UC is quite common.  I had it for 10 years before it switched to diarrhea based UC.  In an unoffical poll of jpouchers we discovered that most of the constipation based UC patients were female and many of us had surgery.  This isnĀ“t anecdotal nor should you be concerned that you will have surgery.  It was just surprising to me that there were many others out there who had the same type of UC that I did.  

Sue 


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


gdfairy
Regular Member


Date Joined Jun 2007
Total Posts : 89
   Posted 1/4/2008 11:45 AM (GMT -7)   

I have UC and I have never had diarrhea.  If anything it was always constipation.  My symptoms would be constipation, dirty flatulence and bleeding.  My colon would get so swollen and inflamed and nothing would want to pass except wet gas.  Since I've been on Lialda, I no longer have constipation, in fact, I empty out in the morning (soft and solid), but it's horrendous!  I'm bearing down with spasms like I am about to give birth to a bowling ball.  The only way to stop that is to take probiotics, but probiotics totally constipate me.  I've yet to find one that doesn't. Even very low dose pearls get me in trouble.

I think I've tried every drug so far but remicade and humira and nothing really worked to get me into remission for more than a few weeks at a time--I really do think I've been hard to treat because the drugs they give UCers are not for my type of symptoms.   Any relief would be temporary.  The only thing that did work in the past was cortisone enemas--but I couldn't stay on them forever.  My next step will probably be humira if my insurance will cover it.  I really do wish there was a board just for us.


Left sided UC 3 years
Current Meds: Lialda 3 in the Morning
Rowasa when needed or Canasa
Multi Vitamin/Mineral
Fish oil
Biotin


Katie Rose
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 1/4/2008 2:43 PM (GMT -7)   
gdfairy: Your symptom's mirror mine. I've never heard of Lialda, so I checked it out on WebMD. Apparently they use it for both Crohn's and UC patient's. You only have to take it once a day? Any notable side affects to be concerned about? I sure wish I had this info before I reordered 6 months worth of Asacol. :) I will definitely talk to my DR about it. I recently started taking a fiber supplement (just the last few days), but has'nt seemed to make a difference. Just more gas to deal with. Have you had any luck with fiber supp's ?? If so any particular brand and dosage?
PC

Female 45 years old.
Diagnosed with UC since 1994 Lower left side
Currently taking a multi vitamin and Asacol 3 tabs 3 x's a day.
Tried: Probiotics, Fish oil, Prednisone, Rowasa & Hydrocortisone Enemas, Sulfasalazine


gdfairy
Regular Member


Date Joined Jun 2007
Total Posts : 89
   Posted 1/5/2008 9:59 AM (GMT -7)   

PC,

I hate to recommend Lialda over anything else because I'm presently not doing well at all.  At first when I took the lialda I thought I stumbled upon a miracle. It worked fabulously--and only once in the morning.  I felt like I had found the answer.  I went to the bathroom like a normal person; the only problem I had was some dry flatulence, but I was able to deal with that--no other side effects. Then, about two months into it, I started having more and more flatulence and horrible mornings with too much going to the bathroom (solid but soft) and pressure and bearing down pain.  So, I knew I was going into the throws of another flare until it reached it's peak yesterday and I'm almost back to the way I felt before medicine.   I've tried fiber a year ago, all different brands but it made me worse.  The only thing that stopped the pain, spasms, and gas was probiotics, but again, they made me so constipated (I've tried several brands) I had to stop them.  I have an appointment in two weeks with the doctor.  Can't get an appointment before that unless I want to see the PA, so I'll wait.  But I'm really a at loss of what else to try since I've tried antibiotics, 6MP and all of the Mesalamines and rectal medicines.  I'm not really in favor of giving myself shots, since that will probably stop working too after two months.


Left sided UC 3 years
Current Meds: Lialda 3 in the Morning
Rowasa when needed or Canasa
Multi Vitamin/Mineral
Fish oil
Biotin


quincy
Elite Member


Date Joined May 2003
Total Posts : 29848
   Posted 1/5/2008 1:44 PM (GMT -7)   
gdfairy...are you still using the Rowasa nightly?

quincy
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Katie Rose
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 1/5/2008 1:47 PM (GMT -7)   
Gdfairy,

I'm so sorry that your not feeling well. The up and down certainly seems to be the norm with this disease. Every now and again I'll try something new and it will work for a little while. I'll be thinking that "finally' I've found something that works, and then I'll take a turn for the worse. Go figure!! I have been off of Asacol for about 5 weeks now (it did'nt seem to help much, and I wanted to go pill free for a while), the constipation has been getting the better of me, so I thought I would try some fiber. Not a good move. I'm back to constipation, bloating, dirty flatulence, and some bleeding. I have stopped that and will just try and settle my system for a little while. I do have some Anucort suppositories that I may try. Hopefully these can shock my system back on track. I have found them to work in the past, however, given the consitipation and constant flatulence their not much "fun" to use. ;) If that does'nt work I'll go back on the Asacol. Have you tried to contact your GI Dr by email? Mine will usually prescribe me something without me having to go in for a visit. I can relate to what your going through. Get lot's of rest, and I hope your feeling better real soon.
PC

Female 45 years old.
Diagnosed with UC since 1994 Lower left side
Currently taking a multi vitamin and Asacol 3 tabs 3 x's a day.
Tried: Probiotics, Fish oil, Prednisone, Rowasa & Hydrocortisone Enemas, Sulfasalazine


gdfairy
Regular Member


Date Joined Jun 2007
Total Posts : 89
   Posted 1/5/2008 6:07 PM (GMT -7)   

I only used the rowasa when needed but right now I'm too raw to use them--and I can't keep them in.  I think I waited just one day too long to use them.   I used the cortifoam I had around the house (my house is a virtual drug store with everything I've tried for this, so other than humira, I'm pretty well stocked) and it's helping a little but really doesn't go up far enough, along with some anti-spasmotics.  I'll have to do the cortenemas (which I also have hanging around) before I can get off them and go on the rowasas, and even with the rowasas, I can't keep them in all night or they make me worse.  I find them very strong.

I wouldn't go medicine free, PC, especially since the suppositories are only going to help the very lowest portion of the colon.  I feel exactly the same way, why doesn't the relief last more than a month or so, no matter what I use?  I do know that the cortenemas work and work well once you can keep them in, they really take down the inflammation in my case and I can live like a normal person and have regular bowel movements--it's just that steroids are not something you want to stay on long term.


Left sided UC 3 years
Current Meds: Lialda 3 in the Morning
Rowasa when needed or Canasa
Multi Vitamin/Mineral
Fish oil
Biotin


danile
New Member


Date Joined May 2007
Total Posts : 19
   Posted 1/5/2008 7:27 PM (GMT -7)   
Katie Rose said...
Constipation UC?? I will definitely do more research regarding it. I've talked with my GI Doc about it several times. I get the impression from him that it is normal?! But when I do talk with other's that have it, they always relate the fact of their sudden urge to go and diarrhea, so I'm contantly questioning whether I have been properly diagnosed(which can lead to a kind of denial :)) I have had about 6 colonoscopys over the last 14 years, and, my GI Doc assures me that I have UC but...... I'll check it out, thanks a bunch.
I can relate.  My symptoms on dx were C, severe cramping, blood, mucus, (urgency, frequency with the latter 2), bloating, and frequent mouth ulcers.  I haven't had D at all.  I asked my dr. and his explanation was that people describe the symptoms differently - one person's mucus is D to them, whereas to me it's just mucus.  I don't know that I buy that; maybe some people here can chime in.  I think earlier my dr. also told me that C was a result of inflammation (but I've also read that results in D) - maybe it depends on how bad/where the inflammation is.  So I'm sort of confused and in a bit of denial too.  The meds did work great for me right after diagnosis but then gradually I've needed more of the 5-ASAs to keep my system moving and preventing the C and cramps from coming back, and keeping the urgency/frequency tolerable.  The blood and mucus are pretty much constants these days...no remission in sight there.  Oh, I did try lots of fiber before my dx but it did not help much - I guess b/c my problem was soon to be bigger than that.  Anyways I wanted to let you know you're not alone, and it would be great to learn more about our form of UC. 

Diagnosed 3/07 with left-sided UC
Meds: Asacol (9+/day), Rowasa


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 1/5/2008 10:37 PM (GMT -7)   
danile - Your doctor is wrong about what he told you regarding some people just count mucous as D, and others don't. (That may be true for some of his patients, but most of us actually do have really bad D, not just mucous!) I've had severe D, as I think most people with UC have. It's disheartening to hear he's telling his patients such misinformation. At the beginning of my first flare I had really bad constipation for about a month (with bleeding, cramping and some mucous). As the inflammation and ulcers worsened it turned into severe D and severe cramping, along with more blood and mucous and urgency, frequency. I think you're right that symptoms depend on how bad and where the inflammation is.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


gdfairy
Regular Member


Date Joined Jun 2007
Total Posts : 89
   Posted 1/6/2008 9:21 AM (GMT -7)   
My doctor explained it was the inflammation causing the constipation.  That the inside walls of the colon were so swollen and inflamed that nothing but gas, mucous and blood could pass through, and the longer it took to have a bowel movement the harder the stool got which created a vicious cycle.  That's why some people get impacted and have to have surgery.  When I'm i in a really bad way, if all else fails, I take a high dose of magnesium.  Gets it really soft, almost liquidy and I eventually clean out--but it's not fun--not quite as bad as a colonoscopy prep, but you have to do this on a weekend or your day off.  Then I start the enemas to get the inflammation down along with my oral meds.  I just think it's all individualized how anyone's particular body reacts to the inflammation.

Left sided UC 3 years
Current Meds: Lialda 3 in the Morning
Rowasa when needed or Canasa
Multi Vitamin/Mineral
Fish oil
Biotin

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