Old Hat i know that she came from sinai , that was why i had a good feeling about
her training, my internist highly recommended her, she does a lot of research and is well published on ibd. i am going to a forum on long island on jan 13 and there will be a dr there presenting information, i will be interested in checking out his manner as it is so important to have a responsive dr. i appreciate all you have done to listen and answer me, i feel as though the 2 drs i've come across so far don't get what it is to be new at this and they say take this and this and call me if you don't get better,otherwise make an appointment in 3 months. what does that mean to us? i don't know what better is, i don't know how much medicine or when to stop it, all of the oral meds warn about
checking blood levels and organ function but both drs waved me off about
that question. that is why i have them checked on my own, fortunately her gyno and internist want the bloods checked fairly regularly, they have been off, she has been anemic and had low potassium and now the sugar issue. i know i've said this before but i'm not a whining mother but you have to be your own advocate because these drs. forget you when you leave their office. i know she's 19, but she is not familiar with the medical establishment and 19 is still young. ineed to know that she isn't being over medicated and right now she is just happy to sleep through the night again and not see blood in the toilet. so once again i take your advice seriously, i read these posts with pen in hand and hope to be better prepared for my next dr conversation. please i hope i'm not annoying.
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
hydrocortisone enema at bed tme
Post Edited (PLEASE) : 1/1/2008 7:41:27 PM (GMT-7)