Posted 1/1/2008 11:21 PM (GMT -6)
Awesome and very informative Judy. But, geez - I must've got bit by the curiosity bug lately! When I read this:

In one 10−year study, 87% of patients went into complete remission after a single attack and only 8% developed a chronic persistent condition.

Surely this can't be right???


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 

Posted 1/1/2008 11:33 PM (GMT -6)
I clearly missed that part Sherry...is must be a typo, for it doesn't seem right at all!!!

q
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 1/1/2008 11:34 PM (GMT -6)
Yeah, I thought that too. Maybe it was just that one study, or maybe it's just that only those of us who have a lot of trouble come here.

Of course, I suppose you could say I went into remission after a single attack. The thing is, that single attack lasted from 2001 until 2006.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 

Posted 1/2/2008 12:00 AM (GMT -6)
LOL Judy....I do tend to ignore stats...for they can always be fudged depending on what outcome "they're" wanting to encourage.   What determines remission?  I could be considered in permanent remission by some doctors....med supported,however.  Depends on what determines a flare as well. eyes
I had a doctor tell me that my having PSC was UNLIKELY because I'm female.  Hmmm...I've seen more females recently diagnosed with PSC than males...although they tend to seek others and info more than males....well, based on stats anyway....bwwwwwwaaaaaahahahaaaa!!! devil

q scool
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 1/1/2008 10:04:20 PM (GMT-7)

Posted 1/2/2008 12:07 AM (GMT -6)
Yeah, that doesn't seem right, especially since later the article states 20% of UC patients eventually have to get their colons removed.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed

Posted 1/3/2008 9:27 AM (GMT -6)
I noticed we have several new members again, so bumping this up for them.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 

Posted 1/3/2008 9:28 AM (GMT -6)
Judy, this truly is an awesome website - would you like me to put in the resource section so you don't have to keep bumping?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 

Posted 1/3/2008 10:08 AM (GMT -6)
That would be great, Sherry. I wish I had been able to find this information all in one place five years ago when I was so sick. Thanks for offering!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 

Posted 1/3/2008 11:11 AM (GMT -6)
Very informative indeed, thank you.
Moderate pan-UC, diagnosed 12/07.
Asacol 4 x 3, Colocort nightly, probiotics, fish oil, vitamins.

Posted 1/3/2008 11:17 AM (GMT -6)
Done deal.....We have really great info in the resource section already but what's the harm of adding one more ya? :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 

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