Again, if her disease is proctitis (only in the rectum), the suppository may be a good way to go. If it is proctosigmoiditis or left-sided UC, the mesalamine enemas will most likely work better. This is because the suppository only gets the medicine into the rectum, not the higher areas. The meds we use are primarily topical, like a skin cream. They're made to act directly on the colon wall. This is why you'll see us talking about
what part of the colon certain medications are released in. If she's having trouble retaining the enemas, try giving only half the volume to start with, and have her lie on her right side after the enema. As her colon heals she may have better luck retaining them.
You could either use the hydrocortisone enema at bedtime or the proctofoam a couple of times a day to see how that works. Using both just seems like a lot, especially when she's showing signs that may indicate systemic effects of the steroids.
And thank you, but I'm not brave. I just take what life gives me and keep on living, because I prefer that to the other choice - not living.
As far as the blood sugar, my internist followed that for me and monitored my program. GI's aren't really trained in that area. Because your daughter is young she may not have a GP or internist, but now that she has a chronic health issue, it's important for her to have a primary care doctor who can find and follow up on all of these sorts of things.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off.
Current meds are Colazal,
Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.