New Here, My Story So Far

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Picton
New Member


Date Joined Jan 2008
Total Posts : 18
   Posted 1/2/2008 6:59 PM (GMT -7)   
Hi everyone. I'm a male, late thirties, east coast US, diagnosed with moderate pan-UC at the end of 07 after several months of worsening symptoms including diarrhea, blood, night sweats, weight loss, fatigue, and as many as 6-7 BMs/day. Colonoscopy and biopsy were unambiguous. Right now I'm on Asacol (4 x 3) and Colocort, and they seem to be turning the tide. No blood, no diarrhea, down to 2-3 solid BM/day, and I'm putting on weight. But I know I'm in this for the long haul. It's not a nice disease, but I'm trying to stay positive. There are worse things out there.

I had an episode of UP in my early twenties that involved several years of flaring and remission. Treated with Rowassa and Pentassa, then generally healthy for about 15 years. No drugs during that time. Except I always seemed to have some excess mucous, gas, and (sorry) noxious bathroom odors. I assumed that this was just the "new normal" for me, but now I think it's clear I was in fact mildly symptomatic throughout this period.

Last fall I had what I think was my first real UC flare. No blood or change in bathroom habits, but cramping, night sweats, and a change in the amount of gas I produce (when I'm flaring, I have very little flatulence). That seems to have remitted without treatment at about this time last year, until the problems started again back in September, which progressed to more severe symptoms, the colonoscopy, and the UC diagnosis.

For me, the diagnosis comes as almost a relief. I have no illusions about the challenges and complications UC presents, but as I said, there are worse things out there. The positive posts on this forum help a lot, and I'd like to think the more I can educate myself, especially including the experiential knowledge of the community here, the better off I'll be. Bottom line is that I'm at a great place in my life, with a great marriage, stable and fulfilling career, home, hobbies, etc. I don't see UC taking any of that away, and the rest I *think* I can deal with. Hope that's not false bravado, but it's where I'm at.
Moderate pan-UC, diagnosed 12/07.
Asacol 4 x 3, Colocort nightly, probiotics, fish oil, vitamins.

Post Edited (Picton) : 1/2/2008 9:57:52 PM (GMT-7)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/2/2008 9:43 PM (GMT -7)   
Picton, we always offer welcome and condolences together for new members. So welcome to the discussion and condolences on your diagnosis.

It sounds like you're on a good track to remission now.

Just one suggestion - if you go to control panel and set up a signature for yourself and include in it the medications you're taking and brief information about your UC, we won't keep asking you over and over.

Welcome to the board!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


Picton
New Member


Date Joined Jan 2008
Total Posts : 18
   Posted 1/2/2008 9:54 PM (GMT -7)   
Thanks, Judy. Done.
Moderate pan-UC, diagnosed 12/07.
Asacol 4 x 3, Colocort nightly, probiotics, fish oil, vitamins.


quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 1/3/2008 1:03 AM (GMT -7)   
Hi Picton, welcome to the forum.

Yeah, life does go on with UC. It just sucks at times....some more than others.

quincy
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/3/2008 6:43 AM (GMT -7)   
15 years in between episodes huh? Lucky duck you :) I wasn't as lucky lol. Welcome to Healingwell Picton. We do have a great group of people here with a wide array of information and experiences. We do try to offer much insight to this disease and if you should have any questions, do not hesitate to ask - sometimes that much offered insight can get confusing! But it's well intentioned. :) A few things we always tell our members is never apologize for "gross" talk, how else can you talk about the nature of this disease yeah? And no question is too silly or stupid - one can't learn if one doesn't ask right?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/4/2008 6:01 AM (GMT -7)   
Hi Picton welcome to HW
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 1/4/2008 2:51 PM (GMT -7)   
sorry and welcome! you also sound like you have a good handle on things. It can get rough but this place has been great. Stay Well!!
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 1/4/2008 2:58 PM (GMT -7)   
Hi Picton,

Welcome to the boards and to the HealingWell family!

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


Picton
New Member


Date Joined Jan 2008
Total Posts : 18
   Posted 1/4/2008 4:10 PM (GMT -7)   
Thanks for the warm welcome everyone. :-)
Moderate pan-UC, diagnosed 12/07.
Asacol 4 x 3, Colocort nightly, probiotics, fish oil, vitamins.

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