Kids/Teens with UC chat or website????

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4mySon
New Member


Date Joined Nov 2007
Total Posts : 5
   Posted 1/2/2008 7:05 PM (GMT -7)   
I noticed there are a few moms with teens here battling UC. I was wondering if there is an official site or perhaps a chat time even here that the kids can exchange thoughts, experiences etc. My son went through a very difficult time initially but getting stronger despite very poor CBC results last week (hemoglobin is dropping down to the 8.3 range, and white blood cell is extremely elevated). Seems that it would be nice for each of them to realize they are not alone.

   Judy  
 
Mom to 16 yr old Josh, diagnosed w/UC 9/2007 affecting 75% of his colon. Hospitalized 3 weeks,lost 20lbs, required 2 blood transfusions.
Current Meds: Finished course of Solumedrol(IV), weaning off Prednisone, 75mg 6MP and Remicade (finished 1st course of 3).


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/3/2008 6:30 AM (GMT -7)   
Judy, the children can come on here at any time and use the chat room. It's free and open for all :) Also there is a website for children with IBD. It's www.dragonpack.com - this website also has other lifes problems for kids on there as well. The Ibd forum is on the left hand side of dragonpack I believe.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


UChick
Regular Member


Date Joined Jun 2006
Total Posts : 164
   Posted 1/3/2008 10:52 PM (GMT -7)   
Hi,

I don't know of any specific kids/teens chat forum, but this site is really great. you should encourage your son to post his own topics/comments. I'm 17 years old and was diagnosed when I was 11. It was not easy to understand why it happened to me. I know it was hard to deal with in middle school, but I'm sure it's even harder to handle being diagnosed in high school. It meant a lot to me to have my family's support and for my teachers to be understanding of the whole "I may need to use the restroom" thing.

I'm a big fan of remicade! I've had a few infusions and in my opinion stopped what I thought was going to be another flare. Currently I take Asacol (a maintance drug) and Azathioprine (an immune suppressant), which my GI thinks is the reason I've stayed in remission for 5 years.

My biggest advice for your son is to not STRESS about this or anything else that can only add to the problem. I don't really know if there are other teens on this forum, but I'd be glad to talk with your son.

UChick
Age 17

Diagnosed September '01
Remission since July '02

Asacol- 4 pills 3xday
Azathioprine- 75mg 1xmorning
Took Remicade 3 times, BIG FAN!!!!


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 1/4/2008 4:18 AM (GMT -7)   

Hi Judy, I agree with UChick and Sherry. If he wants, let him post here. My daughter, bratcat, joined. She doesn't post often but she checks into the forum daily. It is nice to find someone your own age to relate to. Last year when she was diagnosed, she found out her old 6th grade teacher has Crohns. about 2 weeks ago, she found out a girl in one of her classes has Crohns. She found out through Facebook. (Did you know there is a group on there about IBDs?) Anyway, my daughter invited her friends to join the group for support and this acquaintance contacted her. Small world in a school with 1700 students.

If your son would like to chat, bratcat said she would be happy to. I am glad your son is on the mend. It stinks watching your child hurting and not being able to make it all go away. If you want to ever chat, let me know. I am available too.


--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 35 mg prednisone, 2 tabs 6-mp
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.

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