PLEASE--my daughter is a bit younger than your doctor (she's 16) so she goes to a pediatric GI. While she is flaring (and now as she is lowering her meds and hopefully going into remission), we keep in touch with the doctor or his PA once a week. They ask the basics (how she is feeling, changes in bowel movements, aches, pains, etc). They discuss any test results (routine bloodwork) and explain why, if any, changes are made to her meds. The calls always end with the doctor or the PA telling us to call in a week unless there is a change and to call if needed. Even over holidays. I did ask the doctor how long my daughter will be able to stay under his care. He said he still sees patients that are in college now. I don't look forward to having to find a GI for adults down the road.
I agree with everyone else's comments that no contact with the doctor for 3 months (while flaring) is terrible. As hard as it is to switch doctors, I would look for another for your daughter. It's funny because we are on Long Island and I was hoping that you and your daughter were going to be extremely happy with the doctor. Then I would have had a doctor to look into for my daughter.
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 35 mg prednisone, 2 tabs 6-mp
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.