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doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 636
   Posted 1/4/2008 8:24 PM (GMT -7)   
Hey guys I have a question
 
Today at work I seemed to be experiencing mild vertigo.  I am guessing it is called vertigo.  I felt like I was moving even when I wasn't.  It caused me to be a little bit worried.
 
The only thing I could think to possibly blame it on, is that I have recently got a new prescription for contact lenses.   But i wore them all week, so I don't know why I would notice it Friday.
 
The only UC med I'm on is Colazal 9/day.  My UC hasn't changed it's pattern recently either.
 
 
Any ideas?

Thanks
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/5/2008 9:03 AM (GMT -7)   
How long have you been on Colazal? Are you flaring at the moment? Have you had your blood checked recently for anemia? Any low grade fevers?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 1/5/2008 9:16 AM (GMT -7)   
I've had that a couple times, but unrelated to UC. It was when I was apparently congested but didn't know it yet. I ended up with a cold a day or two afterward, so when that happens to me i take a decongestant and lie down for a while.
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
Eleventh Remicade infusion End of January


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 1/5/2008 10:00 AM (GMT -7)   
How long have you been on full-dose Colazal? I cannot stay on it longer than 9-10 weeks at full-dose because it gives me vertigo and kidney-related side effects. Another member writing to this site, DallasGuy, said last winter that he was getting real "head-spinners" while on it. I noticed it mainly getting up from bed-- the room would start spinning. Ugh-- very unpleasant & scary, too. Check with your gastro. Mine put me on "step-up, step-down" dosage, meaning that in remission I take less than full-dose & keep an eye out for changing symptoms that could mean flare. Then I have to increase for a while & possibly use Rowasa as a supplement. The doctors are beginning to realize that not all UC patients can tolerate the same dosing for various reasons-- so you may need to pursue this to get your med adjusted. In the meantime, be sure to stay well-hydrated. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 636
   Posted 1/5/2008 5:13 PM (GMT -7)   
I have been on Colazal since 6/2006 at 9/day. I just had blood drawn before New Year's, so I don't know when the GI will get the results. The nurse usually calls me if anything is going on.  I haven't noticed a fever (often I have a low grade fever when the GI nurse checks at my appts).  I guess I am in remission, as I just bounce along the gradient from semi-formed soft stool to occasional explosive (limited) diarrhea (which often is followed in the same day or next by semi-formed).
The only other thing I noticed is that the day I had vertigo and into today, I seem to have a bit of a faster heart rate, which I notice even when I'm at rest and just "chilling out" watching TV or something.
 

I am wondering if sometimes, when I feel "out of it" if it is a varying degree of intensity of the Vertigo thing I described. Kind of like feeling disoriented - whether or not it gets to the point where its so disorienting it feels like actual movement.

I will mention this to my GI.

Between this, and the headaches I get (usually on weekend mornings persisting through afternoon) it has me concerned about my vascular health. I even started worrying that I could have an anyeurism etc. The headaches I get are throbbing, definitely seem vascular related, and I have pain behind the eye during the headache. I'm due for a physical, but I have to locate a *GOOD* GP first, my old GP got out of the business. You guys all know how important/hard it is to locate a GOOD GP. If anyone knows of anyone in the metro-phoenix area of AZ let me know.


As always, thanks for the advice


Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 

Post Edited (doors12) : 1/5/2008 5:16:55 PM (GMT-7)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 1/5/2008 7:17 PM (GMT -7)   
You are still young-- so it shouldn't be vascular problems. It's possible to get side effects from oral 5ASAs; plus, at the conclusion of NIH Phase 2 (of 4) clinical trials for Colazal the recommended daily dose was lowered to 6 from 9. (Phase 3 is now in progress.) RE physical exam: I agree with you that finding the right doc to do it can be difficult. I had the right one for 5 yrs; then the internist who runs the office suddenly decided that they would continue doing blood draws for testing but stop processing specimens for urinalysis! (And we on 5ASAs are supposed to have both done 2-3 times annually to be on the safe side!) Ya can't win! I don't see the logic there except that maybe the office saves money formerly spent on those little paper cups ... / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/6/2008 6:05 AM (GMT -7)   
Doors, are you male or female?

As for possible vascular problems, no you're not too young. These types of problems can occur at any age. Yes, it's more uncommon in the younger population but not impossible. If you have been having headaches with vertigo then yes, I think you should go to the doctor for it. It can be almost anything though. Maybe something as simple as an inner ear problem. If you do find a good doc and go see one, let us know what he/she has to say ok?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 

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