I had the worst flare of my life late october, which included 3 ER visits and an admission to the hospital x 6 days. The first ER visit , they talked to my GI doc, and offered to admit me, or to continue to manage at home. So, they started me on potassium because my levels were low gave me pain meds, and checked to make sure I didn't need to be transfused and home I went. I was on the highest prednisone dose I could be on I think. then about
a week later, with no relief in symptoms, I had new symptoms, a severe upper abdominal pain (on the weekend) So off to the ER I went again. This time I had a gastritis, because of the high dose of steroids while eating very little. So started on Nexium. The 3rd ER visit was because my primary doctor wanted to admit me from his office, but there were no beds. So he said the only way would be to go through the ER, and he called the ER doc and talked with him. I got an IV started in ER and some good IV pain meds, and waited for my bed to
open up. Then, the next day, I got a flex sig, and was on IV steroids. They helped but I kept backsliding in my symptoms. Finally my GI wanted to start the remicade. I guess that helped, because I was able to go home after 6 days. I hated being there, but it was the best place for me at the time. At home I was able to taper off prednisone, and now doing pretty good. There is no good time to tell ya when to go. If you are bleeding alot, and dehydrated, and in pain, those sound like good enough reasons to me. Good luck! I"m sorry you're going through this!!
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo). Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 6-MP 100mg daily, Pentasa 500mg twice a day,
prednisone 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 units daily, Novolog 10 8 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily, and pro-biotics daily.