Hi there -- when we were at the end of our rope I called and left a message with the answering service on a Sat.night. His Dr knew for me to call something was not good. We spoke and developed a plan. I brought him to the hospital that she and her associates have privileges at early the next morning.
I had all the meds typed up insofar as dose, Mgs, time of day taken etc. I also typed up an overall summary of what had been going on for the past year and the reason for bringing him to the ER. I typed in red what his Dr.told me to indicate for a current diagnosis, what she felt needed to be done and wished to be done as she and her associates would be in to also monitor his care along with her telephone # if the ER doctor had any questions.
When the Dr on call came in to examine and ask his questions -- the piece of paper I had for him to read first channeled his thoughts and he wasn't asking all these unnecessary questions that my husband was in too much pain to be bothered answering. (As it turned out the pain meds had him so comfortable he was finally sleeping for the first time in many weeks.) It really helped to streamline things going in with a plan. The typed listing of meds was a help for the nurse for the chart notes she needed to make.
Also if you call ahead to see how busy the ER is so you don't have to wait an unbearable amount of time before you are seen & triaged by the nurse etc. you won't have to deal with that aggravation.
His ER visit and subsequent admittance went very smoothly. Due to his pain level and constant bathroom trips he was given an IV quickly along with pain medication in the IV. Within minutes he was pain free and comfortable which was not the case for several months. It also did slow things way down and he wasn't going to the bathroom often at all. It was Mother's Day and the ER got very hectic not long after he was taken into an ER room of his own. He was admitted early evening and stayed in the hospital for 5 1/2 days total. He needed the pain meds every 3-4 hrs to keep the spasming at bay which is why he was admitted.
The imuran (azathioprine) was started then along with meds for pain management. Things are much improved - but not a full remission yet as he still has multiple BMs each day and needs the pain meds still. However, he is quite functional and finally off the prednisone. He was on and off the prednisone for a year 1/2 and hopefully not be back on it for a long while we hope. Daily life is still a challenge for him but considering where he was he is grateful to have some kind of functionality even though it isn't the greatest sometimes. Some days are better than others but going to the hospital was a turning point for him in addition to signing on with the Mayo Clinic in Jacksonville who are also involved in his current care.
Good Luck -- I hope things turn around soon for you and your pain is greatly diminished as that is so debilitating and gets in the way of so many things.