prednisone, asacol, and driving me crazy

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ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 1/5/2008 9:25 AM (GMT -7)   
hi,
it seems the only time i feel confident that i'm not going to crap myself is when i am on prednisone. i have had to take frequent bathroom trips during work since i have been off prednisone for a couple weeks. i am debating whether i should hang in there and live my life in paranoia or go back on the evil prednisone. i am taking fosomax after a bone density scan so hopefully that offsets some of the prednisone issues. i know my doctor is trying to get me to stay off prednisone. i am also on remicade which i'm not sure if its helping or not. i am trying to eliminate corn syrup since i have a slight allergy - to be confirmed further by a blood test - but the only thing that keeps my stomach settled is drinking gatorade which has corn syrup - even watered down fruit juices seem to either make me sick or not quench my thirst. i'm just frustrated. i'm not asking for medical advice. just experiences. thanks.
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


jujub
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Date Joined Mar 2003
Total Posts : 10405
   Posted 1/5/2008 10:36 AM (GMT -7)   
TPMI, you might try Pedialyte instead of Gatorade. It's more expensive, but contains no corn syrup. It also comes in freezer pops, but avoid these if artificial sweeteners bother you, as they contain aspartame.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 1/5/2008 10:38 AM (GMT -7)   
I started a flare and my doctor put me on prednisone and upped my asacol dose - I know you are taking other medications but I guess it didn't relize that asacol 2-3x was a small dose. I think you can go up to 12 pills a day. Just an idea because I think asacol is not so much to help the flare but to keep you in remission. I think this might have been my problem anyway.
Jessica 26/F
Asacol 3pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days
Culturelle once daily/ three times a day
Tried (Entorcort EC 9ml/day)


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 1/5/2008 11:41 AM (GMT -7)   
thanks for your replies, i forgot to add that i don't have any blood in my stool, its just urgency it seems, i know some of it can be psychological and i try dealing with that but i think there really is a difference with and without the prednisone... i know you can get worse at first once you stop prednisone - i was just wondering if people noticed that they got better over a certain time period, after stopping the prednisone - so i know how long i should stick in there (although i know everyone is different)
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 1/5/2008 2:02 PM (GMT -7)   
Have you ever used Cortifoam? (10% steroid rectal foam) In my experience it's very effective against urgency, which mainly comes from inflammation of the rectum. It's also neater & more convenient to use than liquid enemas. I agree with your doc that you should stay off Pred if possible; it has too many major side effects over time, including cataracts. Can you tolerate plain boiled rice? A serving daily can also help reduce urgency. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 1/6/2008 7:44 AM (GMT -7)   
i do have plain boiled rice daily, thanks old hat....i will look into the cortifoam, thanks
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 622
   Posted 1/6/2008 9:15 AM (GMT -7)   
I agree with Old Hat. You need to be on rectal meds. Try what she suggested or even the steroid enemas. They've always been very effective for me.

Good luck!

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 1/6/2008 10:21 AM (GMT -7)   
Dunno if you've read some earlier posts where we discussed 5ASA rectal foam. (FYI) Unfortunately, it still is not available in the U.S., though Australia, UK, & Europe has had that option for a while now. Knitty_Cat in Australia reports using it with good results. Several of us here have been thinking we should campaign to get the U.S. pharmaceuticals to produce/distribute it ASAP. / Old Hat

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 1/6/2008 10:42 AM (GMT -7)   
try eliminating caffeine, that helps me.
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 1/6/2008 12:39 PM (GMT -7)   
i don't drink any caffeine ;)
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 1/6/2008 1:03 PM (GMT -7)   
RE unsettled stomach + thirst : can you get Apple/Eve Natural Cranberry (100% juice) where you shop? I have found small sips of it to be very settling, especially in early AM. (Good for kidney function, too.) I agree that it's better to avoid Gatorade, not only because of sweeteners, but also because of added dyes/coloring agents. Since you have some already-diagnosed allergies, you could be sensitive to those additives as well. Try bringing some bottled water along with you to work, etc. for thirst-quenching. I think that all of us taking oral 5-ASA meds need to keep them moving thru our bods so we should hydrate with water predominantly. / Old Hat

ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 1/6/2008 2:50 PM (GMT -7)   
i bring bottled water and drink it all day at work...i've tried cranberry juice in the morning but those have turned out be bad days - whether connected or not...i feel like apple juice gives me cramping - thank you so much for your support
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 1/6/2008 5:40 PM (GMT -7)   
for what it is worth, i have frequency when not on pred also, even if no blood. so, I can relate. a few thoughts
1 - the frequency might be a passing stage, so while you're frustrated, remember that it might not be here to stay
2. if you aren't eating much, a different liquid you could try is "ensure" which has calories and vitamins and can be good for keeping nutrition up. I don't know if it has corn syrup, but might be worth checking.
3. always good old chamomile or peppemint teas. have those been helpful with thirst? maybe if you let them cool and then drink them cold?

good luck. I totally understand your frustration. but, if it is any consolation, you're probably much more aware of it than anyone else in your life. probabbly no one else notices.
29/Female/NC
Pancolitis dx 3/07
12 Asacol/day
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, a probiotic.

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