to the girls: Menstrual period and UC

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chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 1/5/2008 4:17 PM (GMT -7)   
I have not had a period in like 4 months and have really no idea why but have been okay with it.  I went through a spell several months ago where I had a super heavy period for over a month....it was terrible.  So, since then, I would rather have no period at all then to have that happen again.  Anyhow, I started my period like 2 days ago and started a flare like 5 days ago so I am thinking that they may be linked.  I have searched online and it appears that some people even do things to control their period b/c it creates a flare with chrones but I did not find anything on UC.  
 
Has anyone else experienced a flare linked with their period?  If so, do you find that once your period stops then the flare goes away or do you normally have to take prednisone to get it under control? It does seems that the heavier my period gets the more I bleed from my butt too.  I am down to 5mg of prednisone and trying to get off for the past 1 1/2 yrs so wondering if I should stick it out or if I am just dreaming.
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 1/5/2008 4:27 PM (GMT -7)   
i would say that since you had a heavy period for over a month and then no period that you could have polycystic ovarian syndrome. You really should contact your gyno because a period that lasts that long is never normal. I have a friend that would experience 5-7 week long periods and then go for months without one. She had PCOS and eventually other things started to go wrong and she had to have surgery. I don't want to scare you or anything, but definitely talk to you gyno about it.

As far as flaring with your period, i kinda get that. for probably 5 years now I've experience diarrhea as PMS symptom that always lessens after my period is over. Since being diagnosed with UC it hasn't changed, but it always makes me go, oh no am i flaring? but then i remember that i've had D with my period for much longer than I've had UC. It could be something like that or maybe cramping of the uterus making you colon a little upset as well. Since you still are on pred, i wouldn't think you'd need to up the dose right away. If your period lasts more than a week call the gyno and get checked out and ask if there could be any link with UC and a longer period or a flare. Or call your GI and ask that before going to the gyno, but either way, if your period starts getting really long again, see your gyno, it just shouldn't be that long.
diagnosed Dec 2006 at 22
diagnosed with IBS at 15
5mg prednisone
1000mg of Curcumin twice a day, probiotics, fish oil-3,6,9, coral calcium, multivitamin, yellowdock, iron, mangosteen juice, aloe vera gel
allergic or intolerant to all 5ASAs and 6-mp


princesscolon
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Date Joined Apr 2006
Total Posts : 733
   Posted 1/5/2008 4:34 PM (GMT -7)   
I would say it isn't good at all that your periods are so irregular and you should definitely see your Gyno about that. I flare up big time when I get my period, always have. It usually lasts till my period is over.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Tapering Prednisone again :( for joint pain, Glucosamine 500 mgs, Vitamin B


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 1/5/2008 4:54 PM (GMT -7)   
I did go to the obgyn when I had that period that lasted a month and she did an ultrasound and exam and everything and found nothing. I have even had my yearly exam done at my family doctor and all was okay so I am hoping that things are still good. I have written off the irregular period to this UC and kinda put it on the back burner until I started to flare and then my period came. So, I am not really concerned with my period as I am whether it is contributing to this flare that I am having. By the way, when I went to the obgyn, she suggested, perhaps, having my uterus burned.............that didn't sound like much fun. She said that it usually stops the cycle all together. That is tempting now........especially if this flare is associated with me starting my period. I just know that controlling this UC every day is tough enough that if my period is going to make it worse then I would be more than happy to eliminate it. I am 40 yrs old and have 3 children so no more child-bearing for me anyways.

thanks so much for your posts.
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 1/5/2008 5:23 PM (GMT -7)   
I rarely if ever get my periods. It all started after my first flare and first round of pred. Occasionally I will have some slight bleeding for no more than a day. I had an ultrasound of my ovaries and everything was a-ok. No one can 100% tell me why but I know it is linked to UC. I was like clockwork (got preggers on the first try) before.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 1/5/2008 5:38 PM (GMT -7)   
Tabitha-
When you do get a period, though, do you flare? I have had 3 things going on prior to the flare: I went down to 5mg a couple days before along with I got a cold and then a few days after the flare started.......I got my period. I am just trying to figure out (ha, ha - like we can figure it out) whether it was the 5mg on prednisone or the cold I got (that I am almost over with) or my period. Who knows, maybe it was all three that triggered it. I just want it to go away.
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 1/5/2008 5:43 PM (GMT -7)   
Sherry has a post from awhile back...I think she has "mini-flares" w/ her periods. I'll try to find it for you.

Also anytime I tapered from pred. I always had a few days of flare symptoms as my body adjusted. But you are right...you had a triple whammy...it is probably just a combo of everything.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 1/5/2008 5:50 PM (GMT -7)   
If I can get through this "flare" without having to increase my prednisone................it would be a 1st and a miracle because I have never had a small flare. I have a small flare that gets totally out of control - so out of control that either I increase my prednisone or end up in the hospital. But, I do think that my UC has gotten less severe over the past 1 1/2 (since diagnosed) so hopefully I can do it this time. I will definately celebrate big if my body will do it this time because then I may finally be able to get off this prednisone. I am finally feeling the moon face go away so it would really hurt my feelings to have to go back up....................it feels like such a set back to taper and taper and then go back up to just start all over again.

thanks
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


momhatesuc
Regular Member


Date Joined Sep 2006
Total Posts : 78
   Posted 1/5/2008 8:07 PM (GMT -7)   
I always flare during my period.  I've learned to start Rowasa when I feel it coming on.  I actually just got a prescription for Seasonale so I'll only have a period 4 times a year.  I haven't started it yet but am anxious to see if it helps!

Leslie, 30~ left-sided UC diagnosed in 1999
9 asacol x day
nightly rowasa (as needed)
multi-vitamin, calcium


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 1/5/2008 10:04 PM (GMT -7)   
During my period I would have increased symptoms, but I wouldn't call them "flares" because a flare to me is full blown out of remission d and all that lovely crap (no pun intended :-) ). Its definitely a common problem with UCers. My primary dr ended up putting me on birth control to control my hormones and that was in 10th grade and I'm a freshman in college now and haven't had much of a problem since. I do tend to get horrible gas cramps though...
I hope things start to turn around for you! :)

Sam

Diagnosed in September 2004

Currently on...4800mg Asacol, 25mg Elavil, Ortho Tricyclen and some immodium

"If you don't like something, change it. If you can't change it, change your attitude"

Maya Angelou


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/6/2008 6:15 AM (GMT -7)   
Yes, I was having mini flares each and every month. Sometimes it would resolve itself and other times I had to start back on steroid enemas. Plus I was having severe debilatating pain with each period. So I seen a GYN and at first he did a D&C, laproscope and hystoscopy. The month after was the first time in I don't know how long that when I had my period, I didn't flare with my UC. So then I opted to "have my uterus burned" which is called an ablation. I haven't had a period since October, my monthly flares are no more and the severe cramping pain from my periods is gone too. An ablation is not fun at all but it allowed me finally to get rid of one of my many troubles! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
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chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 1/6/2008 7:22 AM (GMT -7)   
Thanks Sherry - that procedure is what they spoke to me about also so it is good to hear from someone that had it done. It does sound like no fun but to be rid of all the drama that a period potentially seems to bring with this UC may be a solution for me also.

thanks to everyone for all of your posts
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 1/6/2008 11:21 AM (GMT -7)   
When I was first diagnosed I didn't have my period for about 3 months. Before that I was very regular with my periods and after that first 3 months I am back to having regular monthly periods. I don't flare up with my period, but many here seem to.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


Old Hat
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Date Joined Feb 2007
Total Posts : 5135
   Posted 1/6/2008 1:26 PM (GMT -7)   
Around the time I was diagnosed with UC I read an article concerning women's weight & its effect on menstruation. No longer remember the author or publication it appeared in, but do recall that it gave 100 lbs as a kind of threshold-- for puberty in girls AND for irregularity of periods/cessation in females experiencing rapid weight loss. There were references to World War II-era female concentration camp survivors who had attributed cessation of their periods during incarceration to drugs they thought the Germans put into whatever slop they were fed. Post-war analysis by medical experts attributed the cessation of periods to weight loss & concommitent loss of nutrients. This makes sense, too, for patients with chronic GI ailments. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 1/6/2008 4:07 PM (GMT -7)   
OH yes,  it seems every month I begin like a mini flare with the start of each period,  but so far,  it seems to get better once my period slows down.   I had asked my GI about it, and he confirms it.   Some people do have UC symptoms with the monthly bill.   

                                          ~Christie
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 units daily, Novolog 10 8 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.

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