Old Hat article 5 -asa

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 1/6/2008 11:38 AM (GMT -7)   
thanks for the information re: 5 asa responders, i think i down loaded it a while ago and forgot about it. i am printing now so i can spend sometime understanding it.
it's a good website.
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed tme


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 1/6/2008 12:29 PM (GMT -7)   
You're welcome! It definitely lays out current medical thinking about IBD treatment & presents the doctor's opinion on where research should proceed. How is your daughter feeling? Did she return to college? / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 1/6/2008 7:14 PM (GMT -7)   
Old Hat she returned to college on tuesday. we packed up a suitcase full of rectal meds and lot;s of pills , water bottles and she's gone. she was instructed by sherls associate to cut the hydrocourt enema to every other or even every 3rd day , so maybe in a few days we'll curt it again but, i may have already mentioned that. the associate wanted her to stay on asacol and coloazol, and now that i have started to read the 5asa article i understand where they are coming from, but still her blood work is a problem , and even if the gp tests it he doesn't change the drugs, so why doesn't scherls office just order the bloods, and let us know how often they should be tested. till i get this clear with sherl i have to keep having gp order bloods and then fax them to sherls office, they cut the court enema because of the A1C -borderline for diabetes...and is anemic,but i think i'm catching on and will be happy to speak with her when she returns next week .will have the blood checked again in 10 days up at school,amd then she'll see sherl a week after the new bloods/ but with no more boody d all night long she is a happy camper for now and that's what i want her to be.-thanks again for the resource
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed tme

Post Edited (PLEASE) : 1/6/2008 7:37:33 PM (GMT-7)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5135
   Posted 1/6/2008 8:43 PM (GMT -7)   
It's good that your daughter got permission from the associate to taper the Cortenemas. Regarding lab tests: did you read BENNIE's post to your headline Regarding Overmedicated Daughter? What she writes is that the pediatric GI on LI keeps in contact weekly while her 16 yr-old's UC is flaring. I don't know of any NYC IBD gastro who would do that. In my lengthy experience it has been one month interval blood testing, at the most frequent. AND, from my own reading plus recent posts from other members here, it came to light that urinalysis 2-3 times yearly should also be done for patients taking 5-ASA meds. (Some gastros have been negligent about this!) You might want to raise these Qs about physician contact/lab testing when you attend the Jan 13 forum. Let us know how your daughter is doing as time permits. I'm hoping that she'll get to more conventional 5-ASA dosing soon & progress to remission with no more side effects to disturb either of you. / Old Hat

jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 1/7/2008 7:02 AM (GMT -7)   
I did read Bennies reply to my post-it is what we should expect with the administering of these stong medications.
i just don't get it-see you in april was her answer to us. We just missed the pediatric cut off, and were advised to go to the big gun. i will mention this topic at the forum if the audiance can speak.
thanks
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed tme


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 1/7/2008 2:44 PM (GMT -7)   
PLEASE - I really encourage you to seek a different GI. Sometimes it takes a few tries before you find the right one. I can email my GI at any time, and he always responds within 24 hours, unless he is out of the country (and even then he has responded a few times!). If I go in with a flare and he gives me steroids and I don't keep in touch, he will email me to see how I am doing. If I need an emergency appt., I just call his personal assistant (vs. the hospital receptionist), and she fits me in. That is how your relationship with your GI should be. Don't stop trying GIs until you find one that provides you with the customer service you deserve.
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 1/7/2008 3:45 PM (GMT -7)   
expectcting 226- is your gi in the new york area? sounds like my gyno same thing i even have his cell number, but they are few and far between-thanks
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed tme/now every other night

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