I have to agree with everybody else, this disease still has its "surprises" all the time, even after 12 years. I wasn't as sick when I was first diagnosed, so I was in denial for a long time. Then I felt I had accepted it and totally followed doctor's orders, got worse, went against the doctor, got worse. Then I would say in about 2004, 9 years from diagnosis, I REALLY accepted it. It took a one inch hole going through me to make me accept how serious this was. That's when I started researching, really watching my diet, trying probiotics, etc. Unfortunatley in my personal experience, I haven't seen much of a difference either way. But that doesn't mean I am going to stop trying to do what I can. I guess the biggest surprises have been that I have not found one single medicine that has really helped yet. Also, lately I have these new problems, like joint pain, my eyes seem more sensitive to light... new things popping up. It really sucks! I am glad I can share with you all and I wish they would find a cure already! We deserve it!
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks (had reaction, will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Tapering Prednisone again :( for joint pain, Glucosamine 500 mgs, Vitamin B