I totally accept the DD, yet I still harbor the fantasy that, with Remicade, I'll never have another bad flare. Because the problems come and go, it's an up and down process. I'd say it took me a good three years to adjust my self-image to accommodate a chronic disease. But then I was so sick at first, I didn't have the energy to do much physical or psychological work.
It helped me a great deal to talk about
it with the people I'm with every day. My husband, my team at work. I found that when I explained why I had to miss work sometimes and why I couldn't eat some things and why I barely had enough energy to walk in the building in the morning, everyone was very understanding and supportive. Their acceptance of me as being still valuable in their lives helped me like myself again.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off.
Current meds are Colazal,
Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.