prednisone crazies

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Regular Member

Date Joined Dec 2007
Total Posts : 28
   Posted 1/6/2008 9:22 PM (GMT -6)   
I am down to 10 mg of prednisone and feeling NUTS.....emotionally and physicaly.  I have the shakes one minute and feel like I am 10 ft tall and invincible the next.  I have tenderness all over my body.  Is this normal?
DXed with left sided UC in 1983 at 20 years of age
-Used prednisone for long periods in the early years (1983-1992) which resulted in severe osteoporosis
-remission through two pregnancies 1993/94 and 1996/97 no meds taken other than prenatal vitamins
-flare in 2000 didn't respond to methasalazane supps or enemas tried methatrexate; mostly in remission for 7 years
-July 2007 new flare with additional never before seen symptoms.....hormone related?, not responding to meds

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 1/6/2008 10:53 PM (GMT -6)   
Are the side effects of prednisone grand?!?!? mumble, grumble, grumble...

Best to discuss with your doc to see if there is anything that can help - besides waiting it out... Maybe a slower taper???

Best of luck!
Pan-colitis and GERD diagnosed May 2003
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
Co-Mod for the UC forum
Keep HealingWell running smoothly:

Veteran Member

Date Joined Sep 2007
Total Posts : 955
   Posted 1/7/2008 9:24 PM (GMT -6)   
yes, prednisone made me feel like i was going MAD!!!

i have the stupid jitters and shakes when i want to go to bed now. like withdrawals or something.
i toss and turn like a fish outta water.
i hate it. i cant sit stand or walk around. just cant get comfortable no matter what.
very frustrating indeed!!!
steph - 31 - female - diagnosed UC in 2000
started as proctitis, went to pancolitis..then went back to left side only to splenic flexure.
last 3 weeks have been fabulous with no UC symptoms at all = remission (yey!) 
prednisone = finally finished!!!  woohoo!
1000mg mesalazine 2x day - 1/2 1/4 oxycodone every 6 12 18 hours (weaning)
calicim, inner health plus (probiotic), fentalyn patch for pain and to wean off oxycodone
VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
prednisone finally made me puff out on my last week of taking it ... bugger!

Regular Member

Date Joined Jan 2008
Total Posts : 90
   Posted 1/15/2008 5:24 AM (GMT -6)   
i hated it with a passion, panick attacks, laughter cries, outburst of anger, god isnt this disease just great lol

Veteran Member

Date Joined Sep 2005
Total Posts : 778
   Posted 1/15/2008 11:45 PM (GMT -6)   
Same here! My doctor prescribed 30mg for a week, then 20mg and so on down over 2 weeks. YEAH RIGHT. I would be divorced if I took 30mg in one day. I can take 15 or 20mg max and that keeps me up most of the night and gives me all the above lovely personality and physical side effects. I also tend to talk much LOUDER on prednisone. Wonder why?
Hang in there Pred buddies!
I am a Certified Doxie Lover(Weinerdogs)

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 1/15/2008 11:48 PM (GMT -6)   
I was just so irritable and mad all the time. All that anger was tiring, and of course I couldn't sleep more than four hours a night.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.

Regular Member

Date Joined Oct 2007
Total Posts : 135
   Posted 1/16/2008 9:48 AM (GMT -6)   
I was completely off my rocker on40mg. of Prednisone. I swear, to this day I don't know how my family and friends put up with me while I was on it. I was so irritable and cranky all the time that even little things would get to me. I can manage it better now, though, but at the time I was 40mg., watch out.....

Asacol 4 pills 3x's daily
Imuran 125mg.
Prednisone 15mg.
Calcium with Vit. D Tablets

Post Edited (WhiteSox1) : 1/16/2008 7:55:29 AM (GMT-7)

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