Posted 1/7/2008 4:23 PM (GMT -7)
Unfortunately it seems I have an allergic reaction to 5-ASA drugs, so the options have been rather minimal.

I have read that withdrawal from prednisone use is nasty as it has a physical whip-lash effect as well as a mental dependence. Has anyone else found this to be the case?

After finally thinking things were getting better, I am scared that I'm going to flare again :(
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage

Posted 1/7/2008 5:39 PM (GMT -7)
I had the same symptoms, plus anemia; I've been on Pred since April 2006 and the symptoms started when I got down to 5 mg of Pred every other day. I've been treated for the anemia and had another Remicade infusion. I am going back to the GI onthe 21st and hopefully he'll start me weaning again, this time successfully. If I I can't get off the Pred apparently it's time to seriously consider surgery.
I don't know how it can mentally addictive -- I can't wait to be through with the Prednisone. The only side effect of the wean I DIDN'T mind was the lack of appetite. The weight I gained on the Pred quickly came off.
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97;
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, was almost off, back to 40 mg; 12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran( 2/07)

Posted 1/7/2008 9:23 PM (GMT -7)
My problem is I don't have any weight to loose. I'm 170cm tall and am now 52kg - with my pre-flare weight being 64.

I also wish this cramping/spasming would stop - its not as bad as yesterday, but combined with the increased toilet trips, its making it hard at work.

Ah well, back in to see the GI in 2 days as well as get another dose of Abatacept. Hopefully that will help. At least I'll know for sure if its another flare or if its just pred withdrawal.
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage

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