Hubby started a low dose of 75 mg imuran along with 40 mg of prednisone while in the hospital in May.
In the fall the imuran was increased to 150 mg as he was tolerating it fine as the specialist thought 75mg way too low. The higher dose seems to have made a big improvement. Had the Promethius testing done and now monthly blood tests are done to monitor as well. The prednisone is finally at zero mg. Aside from the fatigue which is a common UC complaint anyway he hasn't had any side effects from that medication.
He is very tired though. Definitely not in a real remission per se. Much more functional, BM's and the urgency are under control. He still makes a number of trips to the bathroom each day but as I have said in so many posts he is in far better shape than he was. Could be a lot better like yesterday and today basically in bed so tired and didn't sleep at all last night. But he was tired before imuran too.
Let's see what tomorrow brings. That's the up and down nature of this I guess.
Even with all the meds he still has pain and discomfort in the rectal area. He is trying to cut back on the pain meds but that could be what is possibly wreaking havoc with him these past two days. We leave for a cruise on the 20th and I have asked him to stick with the meds that have been basically working for him and when we get back and see the Dr on 2/4th he can get tapering advice from the Dr rather than trying to do it by himself. We both would like to see him off the pain meds but for now that seems to make the difference in having better days.
I am getting kind of worn out by all of this and hope he will be able to enjoy a remission sometime soon. I don't want to complain but the roller coaster effect of this just seems to be wearing me down. I took a really bad fall a week ago and thankfully I didn't break anything................been very sore and stiff for the week and a little under the weather and nobody to wait on me....lol. Can you say "pity party" over here. lol
Good luck with the imuran - I hope it helps like it has helped so many.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran
Zero mg prednisone 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month