I just had an emergency ileostomy over the holidays - it hasn't been easy and it is sometimes tough adapting to life with an ostomy bag, but I keep reminding myself that at least I'm recovering now and on my way to good health and not struggling to work through my UC anymore or waiting for the next flare to hit. I was also at a point where I was sick all the time and it was getting really hard to take care of my 17 month old daughter because I was so tired and in so much pain all the time. It is great that only a couple of weeks post-surgery my UC pain is gone and the only meds I'm on are the prednisone I'm trying to taper off of still that I was on before the surgery. I have a lot of support from family and my husband and help with the baby, but recovery is going pretty well and I'm up and able to do lots of stuff now. I will need time off work and help again when I have the second surgery to have the jpouch (hopefully) created.
Check out the jpouch.org website and the ostomy board here on Healingwell. Do some reading before you make your decision. For me, even though it ended up being emergency surgery, I knew it was coming and I am really glad I've had it done. Hopefully I've been through the toughest part!
Good luck to you,
32-yr old female, diagnosed with left-sided UC in 2004, likely pancolitis, maybe Crohn's
1st severe flare started post-pregnancy in December 2006 and never stopped
Was steroid dependent, tried Remicade, didn't work
Sub-total colectomy December 24, 2007
Recovering and waiting for j-pouch surgery . . .