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shoegrl2
Veteran Member


Date Joined Nov 2005
Total Posts : 675
   Posted 1/7/2008 3:07 PM (GMT -7)   
I have had UC for 5 years (still new at this), but my Father is the one having colon surgery tomorrow! My Dad was dx'd with colon cancer a few days before Christmas. I have always thought I would be the one undergoing colon surgery, not someone else in my family! He is having a partial resection and his tumor/cancer is in his left side. He suffered from a stroke a year ago and has never fully recovered. Now I am afraid that this major surgery, and any treatments that may follow, will be really hard on him. 
  I live in Michigan but am driving  the 3 1/2 hours to Indiana (my home state) tomorrow to stay with my parents during the surgery/recovery. I think that I am more nervous than my Dad is. I just don't know what to expect. Please keep him in your thoughts tomorrow and thanks for being my sounding board again.
Debbie
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva. Remicade since Dec. 2005.
 
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/7/2008 3:08 PM (GMT -7)   
Sorry to hear about your dad....sending best wishes to you all!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 1/7/2008 3:19 PM (GMT -7)   
Hey Debbie, sorry to hear about your Dad's surgery. I remember last year when he had his stroke and you were there by his side at that time -- which I know must be so reassuring to both of your parents. Take care and drive safely, and of course, your family will be in my prayers.

Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/7/2008 3:23 PM (GMT -7)   
Please drive safely. I will be thinking about you and your father and I will be wishing nothing but the best.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1611
   Posted 1/7/2008 3:35 PM (GMT -7)   
Thinking of you and your family

Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 1/7/2008 3:44 PM (GMT -7)   
Will definitely be thinking of you and your family. Please keep us posted.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


shoegrl2
Veteran Member


Date Joined Nov 2005
Total Posts : 675
   Posted 1/7/2008 3:53 PM (GMT -7)   
OMG, now I have tears in my eyes and I'm starting to cry. My Dad just called me. He's doing his prep (ugh) and trying to relax. But it was hard to hear from him that he is "afraid". He said he's "fearful" of the pain and what's going to happen to him. I tried to comfort him by telling him that he'll get morphine and that nice little button to push, etc., but I started crying when I hung up. I've never heard my Dad say he was scared of anything and that he thinks he's going to die. Oh my. Tomorrow is going to be hard. I could only tell him how much I love him and that I'll see him in the morning before surgery.
Debbie
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva. Remicade since Dec. 2005.
 
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 1/7/2008 4:06 PM (GMT -7)   
Debbie, I'm sorry and I totally understand. My parent's have never been afraid, and as a matter of fact have helped me through so many rough situations, so it's hard to watch them go through the medical issues they are experiencing. My Dad too had lung surgery for cancer last May, and it was so hard watching both of my parents deal with that. They too said they were afraid, and my Mom tells me all the time that they just don't know what the next year will bring for them. It's rough changing roles with your parents but they have raised a strong and caring daughter. Please know that I'll be sending all my good vibes to you and your Dad tomorrow.

Carol

Remicade - will have my 19th infusion on December 27.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/7/2008 4:47 PM (GMT -7)   
Debbie, I so understand what you're going through. My mother had colon cancer. She had a ruptured appendix as a child, and her lifelong fear was having a colostomy. She didn't end up with one, but it was so hard to see her almost giving up because she was so afraid. As it turns out, she had another six years of good life, so the surgery was well worth the pain. She was treated at Methodist hospital in Indianapolis, by the way.

Thinking positive thoughts for you and your family.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


shoegrl2
Veteran Member


Date Joined Nov 2005
Total Posts : 675
   Posted 1/7/2008 5:36 PM (GMT -7)   
Thank you to everyone for your caring words. As you know, support from here means so much. It has helped me get through many situations and will help me get through this one too.
Carol, you are right. It is hard to have a role reversal with a parent. Many of us Baby Boomers face taking care of aging parents. I recently stopped working, so I can truly spend all the time I need to be there for my parents. Now I don't have the 'guilt" of missing work anymore! Thank you too Judy. I hope in the end that my Dad realizes that the pain is worth the gain if it means a better and longer quality of life. (Which I hope is the case). I'll keep you all posted and thank you again for your kind words.
Debbie
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva. Remicade since Dec. 2005.
 
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"
 


shoegrl2
Veteran Member


Date Joined Nov 2005
Total Posts : 675
   Posted 1/11/2008 8:49 AM (GMT -7)   
I have an update on my Dad's colon surgery. He had his surgery Tuesday and over half of his colon was removed due to the cancer, together with surrounding lymph nodes. We will have the pathology report back today or tomorrow from the Mayo Clinic. His recovery is going remarkably well. He has had an epedural since surgery to block the pain in his torso. They removed that epedural today, so the feeling should be coming back sometime later today. The worst of the pain should be over by today, according to the surgeon. They removed his stomach pump last night, so he might get to have some liquids today (keeping our fingers crossed). His incision is like all of the others, from just below his sturnam (sp?) to his pelvic bone, or thereabouts. He is still on oxygen, i.v.s and catheter, but he his making big improvements everyday. He has to be able to eat soft foods (and keep them down) and have a bowel movement before he can go home. I'm thinking maybe by Monday?
  Thanks again for all of your well wishes. The power of positive thinking and all of the good vibes coming our way have really helped!  :-)
Debbie
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva, align.  Remicade since Dec. 2005. www.myspace.com/dmbarris
 
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"
 


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 1/11/2008 9:05 AM (GMT -7)   
Thanks for the update, Debbie, I missed the original post, sorry to hear about your dad.
 
I am sending your dad good vibes for a quick and complete recovery.
 
Take care and keep us updated
 
 
Dx:  UC Proctitis 2006
 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 
Added: tumeric and probiotics.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/11/2008 9:14 AM (GMT -7)   
Glad to hear he's improving...poor man, that's gotta be really tough losing so much of his colon to cancer, but better his colon than him...keep us posted.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/11/2008 9:58 AM (GMT -7)   
Sending supportive vibes to you and your dad! (Sorry I didn't see this sooner.)

(((Hugs)))
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/11/2008 10:42 AM (GMT -7)   
With such a loving family by his side, no wonder he is doing so well! I'm glad things came out ok or as good as can be expected.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 1/11/2008 2:21 PM (GMT -7)   
I didn't see this post either...weird. Debbie, I'm relieved to hear your dad's surgery went well and that he's recovering nicely.

I do hope they got everything and that he'll be out of the woods regarding cancer.

This is very difficult indeed.

Please take care of yourself as well....

Well wishes sent to you and your family.

quincy xx
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


shoegrl2
Veteran Member


Date Joined Nov 2005
Total Posts : 675
   Posted 1/15/2008 2:41 PM (GMT -7)   
Two steps forward, one step back. Just about 24 hours after my Dad took in his first liquids and the stomach pump was out, he started vomiting. Aaaarrrrgggh. So, back in went the stomach pump for 2 more days. They took it out again yesterday, back to the liquids. Today, he feels like he'll be sick again and is on a "hunger strike" as he puts it. He says he's not putting anything down his throat again, they'll just have to feed him with an I.V. OK, so trying to reason with a now grumpy older man is getting to be an impossible mission. He's walking, his bowels are working (a few times a day; very watery), but he can't keep liquids down. His stomach is so distended and hard from the build up again. He has terrible heart burn, so they put something in his IV to help with that. He is starting to shake - a side effect from last years' stroke - so neurologist hooked him up to Kepra for that. But, he won't drink/eat. I think his nurses are asking for hazardous duty pay to deal with his grouchy attitude right now. I'm at a loss......
Debbie
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva, align.  Remicade since Dec. 2005. www.myspace.com/dmbarris
 
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/15/2008 3:49 PM (GMT -7)   
Debbie, can your mom talk to him and see if he will reconsider his hunger strike? :) Trust me, I know about grouchy 'tudes! Gma went thru the same thing on one of her visits to the hospital. It's times like these that the nurses should get extra pay!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/15/2008 3:49 PM (GMT -7)   

Hi Debbie i didn't see the original post.I'm sure the nurses have seen it all before so don't be worrying about your dads' attitude. hE has been through a hell of a lot.I hope he starts healing faster and that he can hold down his food. It is such a massive operation isn't it.It will take him a while to recover but he has a great daughter beside him.I hope you are handling all the stress of your fathers operation ok.I will say a little prayer for you, your dad and all your family.

          In my thoughts and prayers

                            MArty


                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]

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