Posted 1/8/2008 3:21 PM (GMT -7)
Hi and welcome to Healingwell :) I have to whole heartedly agree with everyone here. Especially to get off the Advil. Any Nsaid can cause intestinal bleeding so this might be your bleeding problem.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
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"The quality of my life depends on the quality of my thoughts."


Posted 1/8/2008 4:51 PM (GMT -7)
thanks much, everyone. my GI was actually the one who said the advil was okay...but i'm beginning to think you all are right, so i'm glad i stopped it. maybe we can just give the remicade some more time & see what happens.

i'm going to go look through the resources thread as well, but if anyone has any other dietary, etc, non-prescription advice, i'd love it. my GI doesn't seem to be a big believer in lifestyle or diet having a lot to do with fixing things, but i'm ready to try just about anything at this point.

judy, i'm working on that relaxation thing...not my strong suit :)

oh, and UCinNC, i wasn't on the 6-MP that long, but my dr decided things were getting worse, not better, so she pulled me off of it.

i really appreciate all of the advice - please keep it coming. this is such a confusing world to come into....especially with the prednisone brain!
Posted 1/9/2008 3:30 PM (GMT -7)
My son is on Asacol 4, 3 x per day. He is getting better, but still goes to the bathroom 12 or so times per day. He let me peek today, and it looked semi solid, and no recognizable blood.  I called the GI and spoke to the nurse about the frequency, especially at night.  She said the NEXT STEP would be Remicade, according to what the GI had written in the file. Haven't we skipped a bunch of steps???  How should I approach the GI? We just began going to him after a friend highly recommended him. He doesn't believe in probiotics either. Should we run???
UC Mom
Son diagnosed 10, 2006 at age 15
12 asacol daily
Culturelle Probiotic
Omega 3
Multi Vitamin

Posted 1/9/2008 3:48 PM (GMT -7)
Hi Hyacinth

Welcome! With the 6-MP it can take 3-6 months to work so you could be getting worse simply b/c your flare was getting worse and the medicine did not have a chance to work yet. I'd say that is still an option for you to try before surgery. I'm on azathioprine a generic of Imuran which is similar to 6-MP so those are other options but they take 3-6 months to work. Also someone today mentioned Prograf and Humira.

I third the stopping of Advil and all NSAID's.

Also, for me personally coffee (regular or decaf) gives me extra bm's when flaring so I have to pretty much stay away from it and I think it helps my colon heal faster by having less bm's (IMO) plus when flaring, fewer trips to the bathroom the better for me!

Yes, it is kind of funny/weird to finally be able to talk about all this = )

Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

Posted 1/9/2008 3:53 PM (GMT -7)
Cyclosporine can get the prednisone working faster, but you will have to find a long term medicine to keep you in remission such as Imuran.
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
J-pouch surgery to be scheduled in 08

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