duaghter /doctor/sntibiotic and other changes?

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 1/8/2008 2:37 PM (GMT -7)   
my daughter told her doc that the bleeding started again after a few weeks of none, and the movements are all loose again,also constant bloating is a major complaint. she told the doc she believed it was the canasa causing loose stools, or at least making her feel cruddy,
the dr swithced the suppository, i don't know to what -she is having it called into pharmacy at school, but she told her to take an antibiotic called rifaxamin-for the bloating and said if it doesn't work after a couple of days go off it. i am wary of antibiotics - does anyone have any input into this trial and error approach with an antibiotic?
also she told her to go off the culturelle and get dannon activea? i thought this is dairy, she has been off dairy since the dr told her 3 weeks ago to stay off all dairy daughter didn't think about it at the time.
Also she told her to quit the asacol and up the coloazol + added back the hydrocourt to every night. if she's not better in a short time then she wants her to come home for a colonoscopy, she just had one in november from the first dr. and we did give her the records, and then on december 14 this dr did a sigmoidoscopy on my daughter.
when my daughter asked about her bloods from over a week ago she said yeah your levels are a little low. no mention of fixing it or checking again.
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed tme/now every other night


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 1/8/2008 3:32 PM (GMT -7)   
Rifaximin is a fairly new antibiotic that was used successfully in Europe, I believe, for several yrs before getting approval in U.S. the last couple of yrs. It is supposed to be non-systemic, acts locally in the intestines & has been used to treat rectal ulceration. Seems like the gastro is telling your daughter to try it-- another test. However, for her to use Colazal is perfectly sensible; many of us have had better results with it than with older oral 5-ASAs like Asacol. RE blood tests: I don't think that any of us were constantly retested during the 1st few months after diagnosis with UC. The patient should try to recoup nutrients thru diet-- so long as your daughter can eat/drink & lower no. of bms daily she should not be in mortal danger! / Old Hat

jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 1/8/2008 3:38 PM (GMT -7)   
Old Hat thank you again -i appreciate you are a wealth of information. she did add a cort suppository swithded up for the canasa. and i guess i'll have to relax about the bloods, it seems i'm the only one worried.
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed tme/now every other night


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/8/2008 3:44 PM (GMT -7)   
Why waS THE ASACOL STOPPED?Has your daughter had a bad reaction to dairy products?Has your daughter started eating a low residue diet since this flare started?
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 1/8/2008 4:06 PM (GMT -7)   
i think the asacol ws stopped because this dr didn't think it made much of an improvement after 3 weeks on it, she had added colazol with the asacol, but now that she has had a setback ti think the dr just wanted to up the colazol and try that. as far as the dairy goes, i don't know if she has a problem, she was never tested the dr originally said stay off dairy, and it sounded logical, but now she has told her to take activiate? i wonder if she can also stay on the culturelle?
thanks
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily
colazal 3 3x daily
proctofoam 3x daily
mesalamine enema 1x daily
canasa suppostiories 3x daily (usually doesn't get to do 3)
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed tme/now every other night


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/8/2008 4:10 PM (GMT -7)   
My GI always says Colazal is the most effective for left-sided UC, so hopefully that will help. The Activia has live cultures, maybe her GI thinks the specific cultures in it will be helpful. Also, some doctors are leery of health store supplements, as they're less regulated than either drugs or food in this country, so that could be the reason.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/8/2008 4:17 PM (GMT -7)   
Asacol isn't a fast acting drug and is more a maintenance drug. But from my experience (16 years) i have found that the best ways to handle a flare up would be to increase my Asacol. Increase the 5-asa rectal meds and my proctifoam.If nothing is working i need prednisolone.
I stay away from all foods like vegetables,fruit,fizzy drinks and meat whilst there is bleeding. I find these foods very troublesome.I stick to soups and pureed foods. Basically foods that can pass through my bowel with minimum discomfort.Some people have trouble with dairy products but if your daughter is experiencing a flare up whilst off dairy, maybe she can tolerate dairy products.I take probiotics and find that they do help.
This is only my experience and everyone varies, but i'm not sure if stopping the asacol at the start of a flare was a good idea.
Marty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 1/8/2008 4:32 PM (GMT -7)   
Asacol did absolutely NOTHING for me! Colazal has helped me more than any other 5-ASA!!!! How many times do we have to say it? : some UCers do well on Asacol; others do not. That is why the gastro being consulted told PLEASE's daughter to switch over to Colazal. It helps many patients with left-sided UC who do not improve with Asacol. Geez! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 1/8/2008 4:48 PM (GMT -7)   
Whats with the attitude oldhat!!Is that not what i stressed!!!That this is only my experience and we all vary.Surely you will recognise that sometimes we have to give meds a chance before stopping treatment. I'm sure that her doctor has good reason to start her on Colazal, but three weeks isn't a signifigant period i believe. I just hope whatever treatment she is on helps her.
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol



        http://www.myspace.com/martybuzz1<FONT]


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 1/8/2008 5:04 PM (GMT -7)   
Yes, she can stay on the Culturelle. Your daughter shouldn't have to avoid dairy unless she herself has noticed problems after eating it. (This is what all my doctors told me) I have no problems with dairy, but it can increase symptoms for many. A lot of people on this board are also lactose intolerant, so that can't have most dairy, but many can tolerate yogurt. Yogurt is great because it has lots of probiotics. I eat it every day. I switch between many brands, including an organic brand and Activia (the vanilla one tastes pretty good). I also take a probiotic daily.

How could the doctor tell that it was the Asacol that wasn't effective when he has her on 20-billion drugs?

Old Hat - Was Rifixamin shown to heal rectal ulcers caused by UC?

I am wary of the doctor giving you antibiotics without first doing a test to find a need for them, but I have never heard of Rifixamin. My doctor gave me Flagyl when first diagnosed and I had no idea why...I think just in case I had an infection of some sort, but Flagyl sucks and I never want to take it again.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 1/8/2008 5:45 PM (GMT -7)   
Sara14-- from what I've read about Rifaximin, it was initially used to treat Montezuma's Revenge (travelers' diarrhea). Then gastros tried it on other ailments & found that it helped certain cases of IBD, mostly in Crohn's patients, I think. They likely used it for Crohn's because more recent med thinking is that Crohn's is bacteria-driven. (I read in the Crohn's Forum that the gastro Please consulted had prescribed Rifaximin to a Crohn's patient who went there for 2nd opinion.) That's what a patient can run into when consulting at a university medical center: exposure to the newest meds, which may or may not help. Of course this is also true of older meds, which do not always help every patient, but in their case, more is known about the med because it has been in use longer & by more people in different areas/situations. / Old Hat

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 1/8/2008 6:40 PM (GMT -7)   
Thanks, Old Hat.
23 years old
Diagnosed with UC March 2007; yet to go into remission
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 1/8/2008 9:14 PM (GMT -7)   
about the probiotic or yogurt with active culture... these are important for women taking any antibiotic. Doctors invariably fail to mention that antibiotics cause yeast infections. I take Acidophillus (probiotic) every time I take an antibiotic.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/8/2008 9:41 PM (GMT -7)   
In regard to prescribing the antibiotic without tests, I think the fact that she is away at school now affects the treatment. She just isn't available to run into the office for rechecks. Sounds to me as if the doc is trying to accommodate her having a real life.

I take a probiotic every day. I never got a yeast infection with antibiotics, but had a chronic one the entire time I was on Imuran. Thank goodness that's over!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/9/2008 5:55 AM (GMT -7)   
I know as a mother, we worry about our children all the time. But you have to remember that bleeding is par for the course with this disease. Yes it's disconcerting to know that your daughter is bleeding, but it seems that she is in good hands - though it confuses me as to why your daughter is (was?) on so many 5-ASA's. Unless she is bleeding profusely, then there is no need to worry excessively. Sure we must always be leary of our bleeding because it can open the door to other problems, but as long as it's being addressed then it's more of a watchful waiting game.

As for yogurt - I am lactose intolerant but I do fine with yogurt. It seems to have different cultures in it then other dairy products like milk. Milk and ice cream just kills me! I also take a probiotic daily now and it seems to really help with some of the wayward symptoms like gut roiling (I call it the liquid gut feeling) and pain. I recently had a procedure in which I had to take antibiotics, those antibiotics caused me to have a yeast infection. But now that I'm on a probiotic, I am doing fine with the antibiotic I'm on now. Just remember to tell your daughter that if she is taking the antibiotic that she has to stagger her yogurt/probiotic intake.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 1/9/2008 7:12 PM (GMT -7)   
red-she was on asacol when first diagnosed and when i took her to a new dr she did not think there was enough healing and added the colazol
,now she has upped the colazal and totoally cut out the asacol.
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily/switched to danon activiea?
chewable vitamin
hydrocortisone enema at bed time

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