Posted 1/9/2008 9:49 AM (GMT -6)
Thanks Paul and Severin. Keep me posted on how you are doing. Are your infusions every 4 weeks then? When I read the info about the drug, the sheet said the infusions were given every four weeks and about 30 minutes long. Severin -- were you ever on Remi?

Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 

Posted 1/9/2008 11:26 AM (GMT -6)
Carol, with the placebo controlled study the first 3 infusions were 2 weeks apart. After that they were every 4 weeks. The open label study I’m in now is every 4 weeks right from the start. The infusions are typically 30 minutes long. The first few in the placebo study were 2 hours. I was told that that was to help mask what dosage or placebo was used.

There are increased risks taking Abatacept and Remicade at the same time. I imagine your doctor would want you off the Remi for a time before starting Abatacept. For the study I had to be off Remi for 12 weeks. Has Remicade stopped working for you? I have my second open label treatment in less then 2 hours and I’m now off to the hospital. Whish me luck.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 

Posted 1/9/2008 11:30 AM (GMT -6)
Carol,

If you do decide to go with Abatacept good luck with getting your HMO to approve your treatment without having a DX of arthritis.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (500 mgs)
Supplements:  None 
 

Posted 1/9/2008 11:50 AM (GMT -6)
Well, they paid for the Remi before it was approved by the FDA, and it's Kaiser, so it's not like I go to a private doctor that carries my HMO. My doc is involved in a lot of the trials which I am thankful for because that means he's always on the cutting edge of things.

Carol

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 

Posted 1/9/2008 12:30 PM (GMT -6)
Carol,

They probably approved Remicade for you because it was all ready approved for Crohns.... similar to Humira, not that it is approved for Crohns you are see more and more UC patients being covered by their insurance companies for Humira.

I could be wrong.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (500 mgs)
Supplements:  None 
 

Posted 1/10/2008 3:05 AM (GMT -6)
Lonely Lane - I've never used Remicade before for my treatment. I see it as one of the more last ditch drugs for me due to the possibility of becoming resistant to it and I may need it one day.

Paul L - I and the other UCers in my trial group noticed it started to have some small effect after the 4th dose, and each dose after that is more noticeable. Hope it works faster for you!
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage
    - 2xColazide, twice a day; 1x6-mp twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 2xScoop of Sustagen Sport per day;
    - 1xBIOCeuticals UltraBiotic 45 per day, 1xBIOCeuticals SB FlorActiv per day;
    - 1xHeaped teaspoon of Metamucil smooth orange powder 3 times a day.

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