Posted 1/9/2008 3:36 PM (GMT -7)
Hi JM, totally understandable, I am glad that you are doing good. For the first 7 years I did not need to take meds all the time then I had a horrible flare and now I have changed my approach. Everyone is unique and you need to do what works for you!
It's funny but I used to say the same thing almost that I was really lucky compared to others, I think we all get whacked w/something in our own way. Though I feel really bad for the babies and children that are flaring and their parents and well everyone....
As for the 20% i'm not sure if that is a lot.....my last scope showed 30cm affected and it had increased 5cm from when I was first dx'd 5 years prior to that. I know compared to some on here, I have a lot less of the colon affected.
I guess what I have learned so far is to enjoy remissions and call your Doc when you start to flare.
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.