Posted 1/10/2008 6:29 PM (GMT -7)
This is a good discussion! I always want to know what the next step will be if this step doesn't work out. For me, if Imuran doesn't work, Remi is the next step. For some reason, I like to over think and over analyze things. My propensity to plan six months in advance drives my hubby nuts!!! I've been working on curbing that desire :-D

I'm still on the fence about Remi vs Humira vs surgery. So, I'm always looking for great discussions like this - where people are free to express their view either way - and give reasons to back them up :) Knowledge is power!
Pan-colitis and GERD diagnosed May 2003
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
Co-Mod for the UC forum
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Posted 1/10/2008 7:47 PM (GMT -7)
The craziest thing is that I never gave it much thought; and Remi hadn't even been approved for UC -- only for Crohns and RA so there wasn't much info on it about UC. I think I was so sick at the time and no other meds were working I just figured what the heck. At my age everyone is on something or has some sort of issue, but it was rough because I had never taken anything more than aspirin before I was dx'd with UC. I was always considered the healthy one! So at 46 I get UC -- go figure. At this point, I'm thankful that UC is all I really have; the rest of me is in check....well, for now!

Remicade - will have my 20th infusion on February 21.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
Co-Moderator for the UC Forum

Posted 1/10/2008 8:21 PM (GMT -7)
I started Remicade because I absolutely despised prednisone and would do just about anything to get off it. I don't think I'm a vain person but I could not stand the weight gain and my moon face was absolutely the worst. I looked more like a cartoon character than a human when I was on prednisone. My GI was the one who brought up Remicade. It is working well for me and I feel like I'm back to "normal."
Diagnosed with UC in Feb. 2005
Colazal (9 a day)
Folic Acid
Remicade remission

Posted 1/11/2008 5:07 AM (GMT -7)
Hmm It seems we have mixed reviews on this. But many of you already answered my questions as to why you started it in the first place. If it comes to where I have to be on Remi and if that fails me too - then at least I can say I've tried everything. Because even though I would like to have surgery and be done with this whole Uc thing, part of me always wants to know that I've fought as hard as I could and tried everything there was to try before throwing in the towel.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
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