I had tried pretty much everything out there, except 6mp and Imuran, and was not getting better. I have been up and down with my UC for the past 12 years, mostly down, but had kinda gotten used to it. I refuse to take Prednisone. (just took it for severe joint pain but I was DESPERATE) Anyways, I was ok with Asacol and whatever enemas and things and being sick, I didn't want to take Remicade. But, the sigmoidoscopy showed my ulcer was 1 inch deep, close to preforating. My GI said Remicade or surgery. I tried Remicade. It helped close the ulcer from 1 inch to 1/4 inch in 3 months, even though I was still flaring. After over a year on it, my symtoms finally were improving. Then, it started not working so great anymore and I tried a higher dose, then had reactions. I took it about
3 years and never had any bad infections, actually was hardly ever sick with colds, never had any side effects till now. I became a lot more cautious about
germs and am a Purell fanatic and maybe that helped. Now looking back, I wish I wouldn't have been so worried about
the Remicade, it wasn't that big of a deal. But, also I wish I would have just had surgery 4 years ago and had been done with all this. It's just so final. And such a big surgery and I have little kids. Thanks for letting me share that! Btw, I had a colonoscopy in Nov. and that same ulcer is 1/4 inch still, UGH!
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm