I hide it from certain people. When I was working, I only told one co-worker because I needed her to cover for me while I ran to the restroom a couple times in a row, and she was nice about
it, but it is not something I run around telling people. All my family and friends know. I appreciate when they ask how I am except I usually want to respond well I have been having very bloody diarrhea or whatever because that is the truth but it depends on who is asking me. I don't care if they feel sorry for me. At least I have an excuse when I dont go to a family function or can't help out with something, because sometimes I am just too sick. I was SOOO mad at my hubby when he went over his bosses house in Nov and they asked why I didnt come and he told them I was prepping for a colonoscopy then they said why and he told them I have UC. He didn't even ask me, I really REALLY did not want the whole football party to know any of that! I am more embarrassed than anything cause sometimes you tell people and they never heard of it and for me it is so embarrassing to try to explain and they get confused. They always think it is stomach ulcers.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm