2nd flare in 7 months now talking remicade

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New Member

Date Joined Jan 2008
Total Posts : 13
   Posted 1/11/2008 12:09 AM (GMT -6)   
my 8 yr old son is in the middle of his 2nd flare in 7 months, his last colonoscopy 2 days ago, the Ped. GI siad he was so inflamed he couldn't get a whole scope for fear of damaginf colon due to his colon being thin from being so inflamed. Since April he has been on Asacol then switched to Lialda (3 a day), was taking entocort (9 daily) but has been on 60 mg of prednisone since Christmas due to a flare, takes reglan and tums for his stomach (dr mentioned scars from bile), 3 cortisone enamas daily(although actually getting 3 is almost impossible, he is so tired and frustated with them)
along with vitamins....... now the dr says he needs to start on remicade because his colon is so ''HOT" right now he really needs to be agressive with treatment, he (the dr) had such concern on his face when he came out of the procedure that my hubby was scared.  Does anyone here have a child on remicade and if so how much did they start with, etc ,etc   the dr is talking giving him a treatment and then repeating it within a week if no change...any advice?
mom of 8 yr old son dx'd with UC (entire colon) 4/07
asacol then switched to lialda 3 pills daily
entorcort 3 pills 3 x daily (normally) currently on 60 mg of pred daily due to flare
cortisone enamas 3 x daily
reglan 5 mg 4 x daily
tums 4 x daily
folic acid
325 mg iron 3 x daily

Veteran Member

Date Joined Apr 2006
Total Posts : 733
   Posted 1/11/2008 9:09 AM (GMT -6)   
I have been on Remicade.  I would think the doctor would give him the first doses at 0,2 and 6 weeks and then every 8 weeks after, maybe every 6.  That is the normal treatment.  I don't know if it differs for children.  Once when I was getting my Remicade, I saw a display that said it is now approved for Pediatric patients.  I hope that the Remicade works for him and he can get off the Prednisone, that is such a high dose of Prednisone, especially for a child.  I am so sorry he has to go through this...

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm

Post Edited (princesscolon) : 1/11/2008 7:21:10 AM (GMT-7)

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