Wow, I'm so sorry your baby is having to go through this, and you also. I don't have a child with UC so can't help much, but I'm going to kick this back up to the top so you'll get some responses today.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off.
Current meds are Colazal,
Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.