New Member - Chiropractor question

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lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/11/2008 3:29 PM (GMT -6)   
Hi all -
New member here - I am 35 and was just diagnosed 3 days ago - pretty unhappy, but gotta get this all figured out. I have been "sick" on and off for 2 years, but constantly for 6 months straight, so at least I can get some medication now to cut the pain of the cramps. I am taking Asacol - helps a lot so far. I have a huge concern about the cost (health insurance doesn't cover it) so any ideas about getting it more affordably would be appreciated. I am an artist & my husband supports me financially...which means i just became an expensive wife tongue
I was wondering if any of you had tried Chiropractors for an easing of the problem. I have read several places that spinal misalignment can cause UC.....I do have mild scholiosis & scar tissue so I thought I might look into it.
I am hoping that the Asacol will calm my running to the bathroom enough so that I can start the retention enemas - I go every 20 minutes or so & don't think it is worth trying one until that slows down.
Your posts have been very helpful for me so far to learn about what I have to look forward to - I read them all day yesterday.
Thanks & glad you're all out there being supportive for each other.

Lily-poo

quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 1/11/2008 3:41 PM (GMT -6)   
Hi...UC isn't caused by spinal misalignment, and chiropractors can't cure it. I've seen a chiro for years for my back/neck/shoulder/elbow/wrist/headache problems....I leave happy, but it's never cured any of them.

Chiroprctors are part of maintenance to feeling well.

How many asacol are you on at this time?

Is your UC throughout your colon or limited?

Welcome to the forum.
quincy
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/11/2008 3:57 PM (GMT -6)   
Hi quincy & thanks -
I started on 3 pills 3x day. Dulls the cramps quite a bit.

My UC is throughout, but my Dr. hasn't given me any specific "names" for it like I have seen in some of the posts here. I still have tests to do....did a Rectal Manometry for the urgency issues and a colonoscopy which showed inflammation from the rectum all the way up. I have to go in again to have my small intestine looked at also in two weeks.

Fun, fun fun :)

lily-poo

damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 1/11/2008 4:00 PM (GMT -6)   
I see a chiropractor too. She has helped me a lot and I would say overall my reduction in UC symptoms are in part due to her help though not fully!

The spine plays a part in the nervous system which in turn plays a major part in the immune system. A poor spine can also lead to IBS symptoms. There is evidence that spinal misalignment can lead to issues which trigger flares.

D
800 mg Asacol + 250mg suppositories daily...
 
...but more importantly a Healthy Diet, low levels of Stress and a steadfast belief that "I am a healthy person".
 
 
 
 
 
 
 


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 400
   Posted 1/11/2008 4:08 PM (GMT -6)   
I've heard that if you have no insurance and a low income, you can write to most pharmaceutical companies (Procter & Gamble for Asacol) and they might give you discounted/free Asacol. You'll probably be required to give them income tax info.
12 Asacol
100 mg Imuran


lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/11/2008 4:10 PM (GMT -6)   
Thanks D -
I have a lot of back pain anyway so it might help. We thought I had IBS for 2 years - my DR. thought that's what it was until the blood came along..... I am so glad to hear that someone else has gotten some bit of relief this way.

Do any of you ever cut back on the Asacol? or is the maintenance dose always that high too??

thanks again

blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 1/11/2008 4:12 PM (GMT -6)   
Lily,
Sorry about youjr UC but you found a great place for info here.
I have seen chiro on and off for many years.
Chiro speeds my back recovery but does nothing for my UC.
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
veggie juice-wheat grass juice--fish oil
Started 1/01/08
raw milk-kefir made with raw milk--natto--caprylic acid-oregano oil
probiotic
1/10/08 Started healthy diet again.
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 1/11/2008 4:13 PM (GMT -6)   
There are treatment dosages and maintenance dosages. Nine isn't necessarily a high dosage for pancolitis. Once you get on the rectal meds and are in a position to cut back the Asacol...I would only think it could be down to either 8 or maybe even 6. You can take them twice a day...if your doc is one who agrees with that.

quincy
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/11/2008 4:13 PM (GMT -6)   
that is so amazing - about writing to them....totally worth a shot. Thanks for that UCinGV. I make very little $$ so that would be just fine.

damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 1/11/2008 4:16 PM (GMT -6)   
IBS and bowel problems are affected by the location of the pelvis...if ur pelvis gets misaligned it blocks the efficiency with which signals are sent from the spine to the connectors in the bowel. This can cause a multiude of problems. We each react differently to confused neuro - signals.
800 mg Asacol + 250mg suppositories daily...
 
...but more importantly a Healthy Diet, low levels of Stress and a steadfast belief that "I am a healthy person".
 
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 1/11/2008 4:22 PM (GMT -6)   
true, but it doesn't cause UC.
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 1/11/2008 4:25 PM (GMT -6)   
No never mentioned that it did. It's a trigger for flares though.

D
800 mg Asacol + 250mg suppositories daily...
 
...but more importantly a Healthy Diet, low levels of Stress and a steadfast belief that "I am a healthy person".
 
 
 
 
 
 
 


lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/11/2008 4:26 PM (GMT -6)   
The confused neuro-signals - messages not getting sent & received - is what I had read about. Which makes sense why it could work for some & not others.....depends on the location of the damage. Quite a learning curve with this stuff! I don't feel like I even have the right questions to ask the Dr. yet - but these forums really help!!

damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 1/11/2008 4:29 PM (GMT -6)   
The more your pelvis is tilted to the left the more the potential for problems. I have no idea why this is true. There is evidence that the greater your spinal curve the more the potential for bowel problems but this could probably be true for all bodily organs.

Do you suffer from double-jointedness (hyper-mobility). There is also a link between that and IBS due to poor connectiive tissue issues.
800 mg Asacol + 250mg suppositories daily...
 
...but more importantly a Healthy Diet, low levels of Stress and a steadfast belief that "I am a healthy person".
 
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 1/11/2008 4:30 PM (GMT -6)   
I disagree with triggering flares....unless the body is completely stressed from the pain. As well....the pain itself can be a symptom of a flare.

Rememeber, inflammation in the colon isn't necessarily seen via symptoms until it's more obvious for some.

quincy
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 1/11/2008 4:35 PM (GMT -6)   
No my GI lists spinal problems as a flare trigger....he's a researcher himself and has the big survey where hes trying to pinpoint all triggers and the proportion of his patients who he thinks have had that issue as a trigger...currently spinal issues is something like 2%.....i attended a prsentation on chronic disease at university campus over here....spinal issues were also implicated as a trigger for Crohns...but obviously as we all know well...not a cause!!....its a bigger problem for IBS though
800 mg Asacol + 250mg suppositories daily...
 
...but more importantly a Healthy Diet, low levels of Stress and a steadfast belief that "I am a healthy person".
 
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30674
   Posted 1/11/2008 4:39 PM (GMT -6)   
spinal problems in what way. Some spinal problems can hinder blood supply. I have had spinal problems since I was a kid (mild scoliosis, mild lordosis, I fell a lot on my tail bone a lot).

But, back pain, albeit constant hasn't caused any flares that I've noticed.
Pain is definitely more noticable when I'm flaring.

Age isn't helping.

quincy
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 1/11/2008 4:44 PM (GMT -6)   
scoliosis, pelvic disorder, trapped nerves and poor posture
800 mg Asacol + 250mg suppositories daily...
 
...but more importantly a Healthy Diet, low levels of Stress and a steadfast belief that "I am a healthy person".
 
 
 
 
 
 
 


lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/11/2008 5:36 PM (GMT -6)   
you guys are a wealth of information - thanks so much. At least it is something to follow up on for potential in the future. For now I just have to get the meds worked out. My mom suggested medication from Canada as a possibility too...

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/11/2008 6:09 PM (GMT -6)   
Welcome to the site, lily-poo, although I'm sorry you needed us.

Your GI's office should have information available about how to get help from the pharmaceutical company with your medication. Ask them and they can help you apply.

I think chiropractors are great for musculoskeletal problems, but I part with them when they start saying everything is caused by spinal misalignment. A competent chiro won't harm you, though.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/11/2008 6:14 PM (GMT -6)   

Here's the link to P&G's assistance web site:

     http://ww2.aegis.com/factshts/network/access/pa/mesa.html


Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/11/2008 11:03 PM (GMT -6)   
Hi! Welcome to HealingWell!

As you can see - lots of info! Room for friendly discussions as well ;-)

Yes, there is a lot to learn about UC! It is good to start learning, but don't stress yourself out by trying to "cram" all of the info in at once. When I was first dx'd I kept a notebook of all of my questions for my doctors. It really helped to make sure I didn't forget to ask something.

See you around!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/12/2008 10:14 PM (GMT -6)   
i had to get off of the computer yesterday.....ran out of energy & went to bed. i wanted to thank you all for the input - and to Judy for the link - i will follow up on that.

UC2008
New Member


Date Joined Feb 2008
Total Posts : 12
   Posted 2/1/2008 2:38 PM (GMT -6)   
I'm a new member. I was just diagonsed with uc January 1st ( what a way to start the new year) I've been having stomach problems since the end of 2004. Had a colonoscopy my doctor said i was fine. I went to another one because the bleeding wasn't stopping and he said i had mild colitis- nothing to be concerned with. He told me ways to control it through diet. I never had lose bowls, always constipation. I went to an accupuncturist for a long time and actually all of my symptoms stopped for about a year. This december, they came back stronger and worse than ever. More blood and massive uncontrollable lose bowls. Finally i couldn't take the pain anymore, went to the emergency room January 1st, where they diagonosed me with severe uc. He scoped me 60cm and couldn't go any further because it was so bad. 60 cm is alot from what i have read here. They started me on iv steroids. I was there for 4 days. They sent me home on 40mg of prednisone, asacol 400 mg 2/3x day. He then upped my asacol to 12/day within 6 days. Shortly after, i began experiencing extremely bad body pain. My lower legs hurt so bad that i couldn't walk. My doctor swore it wasn't due to the medication. They admitted me to the hospital again to run tests to check for infection. Spinal tap and all. Everything came back clean. Within 2 days of being off the asacol my pain disappeared. I was in the hospital for 5 more days receiving iv steroids and iron. Now i am on 60 mg of prednisone, and every week with tapper down 10mg. He said he will start me on Pentasa soon. Has anyone taken Pentasa? I hate the prednisone. It makes my vision weird, my head cloudy, makes me sad. Sorry this is so long, i'm very scared right now. I am still going to work with my accupuncturist and i'm also starting to see a chiropractor. Also, trying to fing a new GI specialist because i feel that my current one doesn't listen to me. My doctor also told me that i can't take probiotics or fish oil, is that crazy? if anyone has any advice or feedback i would greatly appreciate it. confused

lily-poo
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 2/1/2008 4:26 PM (GMT -6)   
hi new member - this is pretty bad - you might want to copy & paste your post into a new thread - it might be looked at more than it would be here at the end of this one. i am taking asacol & it is working well for me....pentasa is pretty much the same medication as asacol as far as i understand it....it just releases in a different part of your intestines. sounds like you really need a different GI!!! you should post a new thread with a good grabber headline - good luck!!
lily
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