Anyone know what were NOT allowed to eat with ileostomy?

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nurse42
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 1/11/2008 4:56 PM (GMT -7)   
I just got an ileostomy in dec. 07, in Cleveland Ohio but i never really got a diet to stay on they said GI soft. Just wondering what if anything we cant have?    Nurse42

Lialdia 4tabs/day

Prednisone 40mg in Am just started this week

Imuran 150mg

Folic acid

protonix 40mg


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/11/2008 5:46 PM (GMT -7)   
Hi, nurse42. It sounds like you're recovering well, congratulations! You may want to ask this over at the ostomies board. We have a few people here with ostomies, but you'll probably get even more information from the folks there.

I know we used to suggest to parents of children with ostomies that they be cautious with foods high in insoluble fiber and "gassy" foods until they knew how the children tolerated them.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 1/11/2008 5:48 PM (GMT -7)   
They say to stay with a soft diet for the first six weeks (to avoid blockage) and slowly add things to see how well you do. The most important thing is to chew your food and drink plenty of water. Certain foods with help thicken such as rice,bananas,applesauce,peanut butter,pastas, but I say everything in moderation. Juices and caffeinated drinks will make your output more watery. Be careful with fresh fruits, vegetables, nuts, seeds as they are harder to digest. And just because something gives you a problem at first, try again later and it might be ok. Food coloring will show up in your output ( red in twizzlers candy will come out looking like blood) Everyone is different so it's important to keep track of what bothers you, it might not bother someone else. Some eat more smaller meals throughout the day so as not to overeat or get to full at one sitting. My surgery was in August and I eat everything now, but I chew, chew, chew! Not looking forward to surgery on Monday and have to start all over again with the soft diet again!
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
J-pouch surgery to be scheduled in 08


nurse42
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 1/11/2008 9:51 PM (GMT -7)   
Thanks for the information on diets, i eat everything also, i had UC for 13 years and never could eat anything so everything taste soooo good (lol). I have a hard time keeping weight on anyway so i try to eat small meals thru the day, i may have the J-Pouch surgery not sure yet i just love having the ileostomy no pain and no medications! I dont want another surgery but my ileostomy went perfect thank goodness and im recovering so well. Good luck to everyone! Nurse42

Lialdia 4tabs/day

Prednisone 40mg in Am just started this week

Imuran 150mg

Folic acid

protonix 40mg


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/11/2008 10:14 PM (GMT -7)   
once your dr clears you from your low residue diet, usually about 8 weeks post op, you can eat ANYTHING you want!  some choose not to eat nuts and seeds, they are harder to digest, and if you eat something like lettuce, or cabbage, be sure to drink lots to keep it moving.
Tbraz, thank you for mentioning the food coloring, noone had ever told me that, and i ate some red velvet cake one night, when we were at a hotel, and i went to the bathroom and emptied my pouch and thought i was bleeding to death!  it was only after a nervous few hours that i figured it out, lol.
I wish someone had told me about that before hand!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/11/2008 10:36 PM (GMT -7)   
I'm glad to hear you're recovering well but I am surprised they didn't give you a list of foods to avoid and/or set you up with a dietician.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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