Help me cannot control flares!

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feelfine
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 1/12/2008 11:37 AM (GMT -6)   
Hello for the past few nights I cannot control my flares they are all in the form of liquid diarrehea blood and mucus. I have lost a few pounds in a few days.

I am on predisone. My doctor took me off of Colazol because it was no working?

I am seeing him Tuesday.

What is the next step?

SHould I ask him to up the predisone or go striaght to Remicade?

I was on Colazol for 3 weeks nothing and predisone the same thing.

Colazol just gave me diarrhea.

I am going at night I cannot sleep!


Someone please help me!!!!!!
34 just diagnosed with UC
 
on Colazol 9 pills a day
 
4 times a day Predocine
 
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 1/12/2008 11:48 AM (GMT -6)   
You can talk to him about a number of things. Prednisone can be a quick patch a lot of times, he may suggest upping your dose and starting asacol as well. I would ask for enemas of some sort, either mesaline (same kinda thing as colazol and asacol) or even a steroid enema or foam.

He may bring up imuran or 6mp but those take months to kick in. Remicade works faster than both of those but it's a big step you need to talk your doc about and get all the info. It has helped a lot of people and i'm sure they can chime in. I'm looking at possibly starting myself in the next month or so.

If it gets really bad and you can't get ahold of your gi over the weekend don't be afraid to go to the er. loosing weight so fast and so much blood lost can be very detrimental.

I'm so sorry you are in such a bad place. It is so frustrating! Good luck!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 1/12/2008 11:48 AM (GMT -6)   
the colazal might have been making everything worse, so if that's why your dr took you off you should see some improvement in a few days. So by tuesday you should know if it was the colazal. (I got better in just 2 days after stopping it, so hopefully if that's what was adding to your flare you will to)
How much prednisone are you taking now?
I'm not sure, but if you're flaring really badly you'd probably continue the pred for awhile longer even if you do start remicade right away.
Make sure you drink plenty of fluids since you're having lots of D, and start taking a multivitamin if you aren't already just to help replenish some of your lost nutrients.
To help calm the D at night, try not to eat for at least 3 hours before you go to bed. That's really the only thing that's helped me.
I hope you feel better soon!
diagnosed with UC Dec 2006 at 22
diagnosed with IBS at 15
5mg prednisone
1000mg of Curcumin twice a day, probiotics, fish oil-3,6,9, coral calcium, multivitamin, yellowdock, iron, mangosteen juice, aloe vera gel
allergic or intolerant to all 5ASAs and 6-mp


feelfine
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 1/12/2008 11:59 AM (GMT -6)   
I'm taking 40mg I don't think that's enough. I will ask about asacol does that work pretty quickly?

He talked to about remicide and imuran but I was only on Colazol for 2 weeks I'm not ready for that change.
34 just diagnosed with UC
 
on Colazol 9 pills a day
 
4 times a day Predocine
 
 


BalS
Regular Member


Date Joined Mar 2005
Total Posts : 312
   Posted 1/12/2008 12:15 PM (GMT -6)   
Hi feelline,
Once to stabalise my UC the doctor gave me high-dose intravenous steroids and within 2 days I started noticing the difference. If you think this is an option then it may be worth talking about it with your doctor.
Bal
UC - Flare-up since Dec2004
3000iu Vit E Enema
3x3 tablets Colazide 
10mg Predinisolone enema
2  Predfoam - 20mg
Asacol - none now - became immune to them after 2 yrs
 
 
 


blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 1/12/2008 12:57 PM (GMT -6)   
Flares suck I hope it gets under control soon.
40mg of Pred. was never enough to get me out of a flare
and upping that may be the first step since you are already on it.
Good luck!
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
veggie juice-wheat grass juice--fish oil
Started 1/01/08
raw milk-kefir made with raw milk--natto--caprylic acid-oregano oil
probiotic
1/10/08 Started healthy diet again.
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/12/2008 4:55 PM (GMT -6)   
L-glutamine can help get diarrhea under control. Mucosaheal and George's aloe vera juice can help heal inflammation.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 623
   Posted 1/12/2008 5:55 PM (GMT -6)   
I agree that not enough pred will keep you in a flare. Much as we hate it, getting enough into your body can certainly get the inflammation under control. Heck, I'd even move myself up to 60 today if I were you, and if it is what you need, it will probably have an almost immediate effect.

You probably need some rectal meds, too. Time to go in and see your doc ASAP. Until then, bump up your pred, would be my advise.

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 1/12/2008 6:31 PM (GMT -6)   
Colazal gave me diareah bad.  I strongly advice staying hydrated. drink lots of water!

Lori
38/F
UC diagnosed 1991
Asacal, zoloft, levoxyl, prednisone 40m, Azathioprine (started 1/9/08)


Pooper Bowl Champ
Regular Member


Date Joined Jan 2008
Total Posts : 68
   Posted 1/20/2008 7:45 PM (GMT -6)   
If i read correctly you were just diagnosed with  UC. I also have UC. Only found out after first flare. Hit me out of the blue. I dont think you have been on meds long enough to control your flare. It took me almost 6 months to get back to "normal". I know it's scary but this may take ahwile. Give it some time , things will get better. feel better, good luck.

~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 1/20/2008 8:37 PM (GMT -6)   
First off,  I soooo feel your pain!!  I was in your place about 3 months ago.   First off,  you probably need your prednisone upped.   I was on 20mg twice a day,  but then it wasn't working,  so then finally had to be hospitalized.  I hated it,  but knew that was the best place for me.   I was then put on IV steroids.  They helped,  but then once again I backslid into worsening symptoms again.  So while in hospital they started me on remicade.  Then was able to get out.  And since then have tapered off the pred, and staying on remicade (along with all my other meds), with the remicade infusions as outpatient every couple months.  And doing good!!  I wish you luck.   Hope you can get this flare under control SOON.   
                                          ~Christie
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 25 units daily, Novolog 10 8 5 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.

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