Plans for remisson???

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blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 1/12/2008 7:05 PM (GMT -7)   
 
   If I ever stay in remission long enough I want to,
 
#1 Run a marathon. I have tried training on and off threw the years but could never
stay well long enough. Of course now my hips and spine are shot so I would
hobble, limp and gimp 26 miles. But if I ever get remission I think I can do it.
I may come in last but my next flare when I am sleeping on the toilet I can say
"remember when  you did that marathon?"
 
#2 Get Fat. I never been able to do that either.
 
How about you?
 


Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
veggie juice-wheat grass juice--fish oil
Started 1/01/08
raw milk-kefir made with raw milk--natto--caprylic acid-oregano oil
probiotic
1/10/08 Started healthy diet again.
 

Post Edited (blessteve) : 1/12/2008 8:44:13 PM (GMT-7)


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/12/2008 8:06 PM (GMT -7)   
#1 - Enjoy life!

Steve - how are you going to run a marathon AND get fat? Or is the getting fat part a reward for running the marathon?

I LIKE how you think!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/12/2008 8:28 PM (GMT -7)   
I'm in remission. My plans:

#1 - stay in remission as long as I can
#2 - eat a little bit of all the things I like and do all the things I enjoy now, while I can
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 1/12/2008 11:25 PM (GMT -7)   
Good ideas. For me:
Go on an overnight camping or backpacking trip. I found that I was able to go on long hikes and other "daytime" activities when I was in a mild state, but I'd love to do an overnight thing.

I'd also want to do another cross country trip in the US and do one in Europe.
Pancolitis '04
Yet to ever go into remission, additional Flare-up since Aug 12th
Time off work since 10/17.  Return to work on 1/11 and doing much better.
 
On Lialda (2/dy), Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/13/2008 7:04 AM (GMT -7)   
I have hardly ever let my Uc stop me from doing what I want to do. The only times that I "couldn't" do anything was many moons ago when I was chained to the toilet going 20+ a day. But since then, my flares are much more milder and if I had to wait until I was in remission - I would never DO anything! :) I always found ways around those urgent times - sure it wasn't fun but at least I could say I did it.

However, I like Judy's answer! The one main thing that I still avoid is certain foods. In remission, I pretty much can eat whatever I want.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


serendipity24
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 1/14/2008 1:02 AM (GMT -7)   
Never having to think again if where I'm going has a bathroom. I second relativelyquantum...I would love to do weekend backpacking trips without carrying multiple rolls of TP! And I want to do one of those 6 hour zip-line trips in the jungle...I had to turn that activity down last year because I was too worried about my UC. It sucks for an adventurous soul!
Rachel

23 yrs old
Diagnosed with UC: March 2004 with probable IBS component

Currently taking:
Asacol 4pills 3x/day
Prograf 5mg/day
(Prograf is my miracle drug! It doesn't seem to be well known, but it's fantastic!)

Previously Tried:
Prednisone (works, but such awful side effects!), 6-MP (gave me acute pancreatitis), Entocort, Cipro (antibiotic), Bentyl, Canasa suppositories, a couple different enemas

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