worried...pred/lialda

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sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 1/13/2008 7:29 PM (GMT -7)   
I have been on Prednisone and Lialda for about 3 months now. I started both after a horrible flare up. Once I took the pred I was great!!!
 
 
Well I've tapered down to 10mg a day now and same dosage as always ..2 in the morning.. for lialda. I am not doing so well now that I am only taking one pill of prednisone. I still have formed stools...which is great... but I'm starting to not have control over my bowels.. I'm starting to run to the bathroom again.. and I'm going way more than I was. I was finally at 2-3 times a day, which for me is remission. Yesterday I must have gone 10 times..   and today maybe about 6. Formed, no blood..that I could see, little cramping.
 
I am terrified that I'm going to have to go up another dosage of pred. and that if I continue on this 10 I'm going to have a flare up..
the dr. was tapering me so slowly because lialda doesnt kick in for 2 to 3 months and she said that once I get to the lower dosages of pred I might find out the pred was masking the lialda and thats what was making me feel better. (I've been raving about how great Lialda is, when its not that that's making me feel better i guess)
 
I REALLY don't want to stay on pred.. but I can't get off of it if it's going to send me into another flare... and going up is going to keep me huge..
 
its like battling my inner demons..    FAT or PAIN and gooshhh i'd rather have no pain, but maaaan I don't want to look like this anymore
!!!
 
:(
Kara, 20
Diagnosed with Ulcerative Colitis March, 07
-Left sided all the way up
-Was on Colazal..it didn't do anything for me. Had horrible flare up...been on lialda and pred since. Seems to be working!
Medications: Colazal 3 pills 3x a day
                  Prednisone - 10mg in the morning w/ food.
                  Lialda - 2 pills in the morning w/ food.


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 1/13/2008 7:39 PM (GMT -7)   
I would suggest calaling your GI and asking about rectal meds. They should help with the urgency and allow you to keep lowering the pred. Have you ever been on Rowasa? its a mesalamine like Liada. Would be worth a try to get off of pred.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08
Prontonix once daily for acid reflux, zofran twice daily for nausea

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