went in to see how I am doing on the azathioprine, everything going well so far, even though he and I both think I still have some inflammation b/c I still have stringy poo though almost fully formed and no blood, no dirreah and minor cramping when I have to go.
Will be going for a colonoscopy in April to see how my colon is doing (last one was two years ago). So I was talking to him about the prednisone and how it took so long for it work for me and he thought I might have some steriod dependency and said well maybe you might need surgery if you are and the imuran doesn't work and then also mentioned going to remicade if when I taper off the pred I have problems. Then starts talking about fertility problems if I have the surgery and I was like, NO, NO surgery, I will not even consider it at this point. I'll go back to 5ASA's and try those first.
Oh yeah and I am having an ultrasound next week to check my gall bladder. ***! I hate all this, I just want to be well.........I'm so tired of all this and scared and just want to cry. I think I am going to go to therapy, it is just so much to deal with. I really want to be well and to be able to have children, to think that I might not be able to is scary.
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.