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**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 1/14/2008 2:42 PM (GMT -6)   
I'm in the middle of a month long flare.  I was hospitalized for two days last week.  They gave me antibiotics through IV (they thought I had an infection) and Prednisone (40mg) orally.  I've continued taking the steroids; however, I'm still going to the bathroom several times a day.  I'm still having bad cramping and there is still blood with almost every trip to the bowl.  I was on steroids last summer for a flare, but I don't remember them taking this long to "kick in."  How long were you on them before you started to feel "normal" again?  I'm just tired of being so sick!  I can barely care for my son because I'm in so much pain and constantly in the bathroom. This is no way to have to live life. I have another colonoscopy tomorrow. . . . we'll see what that turns up. 
 
Anyway, if anyone has any insite as to when the steroids might start to help, I'd apprecaite it. 
 
-Nicole

kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 1/14/2008 2:46 PM (GMT -6)   
The more times you take prednisone the more resistent you get to it. This time it may take a little longer to kick in than last. But since you are seeing your GI tomorrow anyway I would think about asking for rectal meds. I know how horrible they sound but they really can help a lot. It gets the medicine right where it needs to be.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 1/14/2008 2:49 PM (GMT -6)   
For me, anything less than 60mg of pred didn't work for me.  And 60mg only lessened the symptoms - did not take them away.  If you aren't already using an enema, you should consider adding Rowasa (mesalamine) or Colocort/Cortifoam (cortisone enemas/foam).  They really do help with the frequency and urgency.

KTM


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 1/14/2008 2:54 PM (GMT -6)   
Thanks to both of you for such a quick reply.  I usually only rely on the steroid enemas (hydrocordisone), but I tried to use them a few weeks ago and they did nothing.  I guess that's how I ended up in the hospital and back on prednisone.  I'm hoping that I can try something new because what I'm doing now obviously isn't working. confused

TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 1/14/2008 2:55 PM (GMT -6)   
My flare this summer that sent me to the hospital took me a couple months of prednisone and flagyl before it got better. Then I would do good for a couple days then bleed..it was like 2 steps forward one step back. Hang in there!
Lori
38/F
UC diagnosed 1991
Asacal, zoloft, levoxyl, prednisone 40m 30m, Azathioprine 100m (started 1/9/08)


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 1/14/2008 2:56 PM (GMT -6)   
Sometimes you need to double up the enemas - do one in the morning and one at night.  A bit of a pain in the neck to do the morning dose - but it usually helps.

KTM


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 1/14/2008 3:00 PM (GMT -6)   
It took a long time for the steriods to help me, I got worse before I got better. I'd say it took me 1.5 months. The hydrocortisone e's really helped me, sorry that they have not been doing the trick for you, maybe doubling up will help?
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


maud
Regular Member


Date Joined Jan 2008
Total Posts : 90
   Posted 1/15/2008 4:10 AM (GMT -6)   
oh bless, how horrid, my first bout was last yr and all being well im so so now, the pred didnt take long to kcik in last yr about 2 weeks i guess, i know they take months to come out of youre system, 2 months i believe x

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/15/2008 9:09 AM (GMT -6)   
Depends on how sick you are. The first time or two I was on it, I had to start at a higher dose and it took a while to feel better. This last time, with a mild flare, I was started in a moderate dose with an immediate taper and I felt better overnight.
 
Are you doing anything else to support your health? Supplementing with probiotics to restore good gut ecology, taking omega-3s for inflammation, taking l-glutamine to help control diarrhea... there are alot of things you can do to reduce your need for meds.


Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


maud
Regular Member


Date Joined Jan 2008
Total Posts : 90
   Posted 1/15/2008 12:45 PM (GMT -6)   
its not couse i now feel unwell as such i am just not who i used to be
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