PLEASE, has she been tested for lactose, sucrose, gluten, etc. intolerance? This might be something to ask about
. And since you're going to a major IBD center, they're probably participating in a lot of the clinical trials. But I agree that most trials only take people who have failed at the therapies which are already approved.
You've said you're afraid of drugs like Imuran and Remicade, but most of what is currently being tested is likely to have potential side effects as serios as they do, and perhaps more so. For all of us, it becomes a matter of weighing the possible bad effects of a treatment against the certain bad effects we're already suffering.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal, Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.