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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 1/14/2008 4:45 PM (GMT -7)   
 Hi everyone-
 
I have been lurking off and on for 6 months and have learned sooo much. I was diagnosed with UC January 2007 at the age of 41. I have had "stomach problems" since I was in my 20's but I was told I had IBS.
 
The disease has progressed rapidly and I am now considered to be in a severe state. I started off with Rowasa enemas and am now taking Lialda 4x a day, prednisone 10 mg, protonix, Remicade 4th infusion Feb. 7th and the doctor just started me on 6MP. I am really having trouble reaching remission. The doctor is talking surgery.. but he is trying everything he can to prevent that. So far I have only been hospitalized for 5 days in Oct. during a particularly bad flare.
 
I have a very demanding full time job and am married with two daughters- 13yrs.  and 4yrs old.
 
I just wanted to say Hi to all of you and to come out of lurker phase.

UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 1/14/2008 5:10 PM (GMT -7)   
Hey jblue. welcome to healing well. sorry you have to be here, but it is a great group of people. just curious... did you try the remicade before 6-MP, as opposed to 6-MP/Imuran before remicade?
29/Female/NC
Pancolitis dx 3/07
12 Asacol/day
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, a probiotic.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 1/14/2008 5:42 PM (GMT -7)   
Hi Jblue and welcome. It can be very scary hearing surgery, I am still learning so much myself, I wish I had some advice besides hang in there! take it day by day.
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 1/14/2008 5:48 PM (GMT -7)   
Just wanted to say Hi and Welcome! We are glad to have you here. This is a great site w/ tons of information and super supportive people.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 1/14/2008 6:11 PM (GMT -7)   
UC in NC-
I actually had the Remicade first- not sure why? I think the doctor felt that Remicade was going to help right away, but it hasn't. Today he told me that he wants me off Prednisone and that is why he is trying the 6MP- I am really hoping that the fourth time with Remicade will be the charm... and that it will kick in.
 
Thanks for your support.
 
 

AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 1/14/2008 6:45 PM (GMT -7)   
Hi jblue65. Nice to have you on board, it's a wonderful support and learning place. Keep us posted and if you want to know the truth, I still lurk a lot and post once in awhile! :)
AlabamaBabs
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/15/2008 7:33 AM (GMT -7)   
JBlue - I'm glad that you've been learning so much from the forum. It's a great place! Very glad that you decided to join us as well :)

Best of luck with your new meds! Let us know how things go :)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

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