A newbie with a question

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Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 1/14/2008 4:59 PM (GMT -7)   
I have read here for quite awhile, but just now registered.
 
I have to be truthful and tell you that everything I have read about taking Prednisone is so scary and horrible, that I have to wonder if the cure is worst than the disease?
I am not on it, but it was suggested once, and I said I am no where bothered enough yet to try that, and just refused.
I am on 2 asacol 3 times a day, but truthfully, Immodium helps much more than the prescription.  If I take Immodium the night before an event, I am fine. No Immodium and I have to go to the bathroom soon as I finish eating.  I don't go to the bathroom any other time, but after I eat.  But, since having my gallbladder removed years ago, I always had that kind of problem and they warned me I would. I don't have cramping, nor actual diarrea, just blood, and having to go soon as I eat(within 10 minutes.
I do have bleeding, but also was told I have hemmroids(sp?)
I also have to ask somewhat of an embarassing question.  Can any of you pass gas without having something happen in your undies?  I don't dare pass gas without being on the toilet, or I have blood in my pants.
Anyhow, I have an appointment the 16th for my 6 month check up with my GI, and wanted to get some feedback here in case I needed to discuss some things with him I am confused about.
Thank you for reading my long first post.

UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 1/14/2008 5:13 PM (GMT -7)   
hey Joylu - no embarassing questions here, don't worry, as we have all had to deal with these awful questions. I often cannot pass gas either for fear of something coming out so like you I usually get to a toilet before passing the gas. that is new for me - I used to not have that problem. it's a bummer, huh? anyway, welcome. people here are great.
29/Female/NC
Pancolitis dx 3/07
12 Asacol/day
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, a probiotic.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 1/14/2008 5:36 PM (GMT -7)   
Hi Joylu,

I know I have been posting terrible things about prednisone, but let me tell you, it is better than going to the bathroom 25+ times a day and having horrible cramping. I can at least function, whereas before I could not. I wish I could be off of it right now but taking it doesn't mean you have to take it forever, it might really help jumpstart a remission for you.

how was the gallbladder surgery? I have an ultrasound next week and I am scared, I don't want anything else to be wrong w/me.. 
 
Also, I call passing gas with other stuff (i.e. blood & or mucous) a shart.  I have not sharted in a while and let me tell you it feels good to fart and let all the pressure out and know that it's just a fart.  When flaring, I could not just fart and all the pressure would hurt me.
 
I hope you get some good news at the Doc, keep us posted!


Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 1/14/2008 5:44 PM (GMT -7)   
Hi Joylu. Don't worry about embarrasing questions - we all have UC and understand completly.

To answer your question, no - I don't dare pass gas without being on the toilet incase I have an accident.
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage
    - 2xColazide, twice a day; 1x6-mp twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 2xScoop of Sustagen Sport per day;
    - 1xBIOCeuticals UltraBiotic 45 per day, 1xBIOCeuticals SB FlorActiv per day;
    - 1xHeaped teaspoon of Metamucil smooth orange powder 3 times a day.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/15/2008 6:20 AM (GMT -7)   
I have managed to avoid being on Pred for 15 years. I'm sure at times that I could've used it, but my GI believes that to be a med as a last resort kind of thing because of the side effects and long term ramifications. Many people, however, do great with this med and they DO need to take it - but don't let all the horror stories scare you. If the time comes and you have to be put on it because you can not get a flare under control - hopefully it will only be short term.

And I totally agree with the others - there is no such thing here called gross, stupid or embarassing questions. We are open to all discussions of this disease because it's the nature of the beast.

Welcome to HW btw! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
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"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 1/15/2008 7:56 AM (GMT -7)   
Sometimes a flare can be brought quickly under control with a moderate dose of pred and an immediate taper. Even a higher dose for a longer period of time isn't always a bad thing. For some people, it works very well and there are steps you can take to minimize and/or recover from side effects. Check out the book Coping with Prednisone: It May Work Miracles, but How Do You Handle the Side Effects to learn more.

http://www.amazon.com/Coping-Prednisone-Miracles-Cortisone-Related-Medicines/dp/B0002Y6AEO/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1200408900&sr=8-1

Meds are always a trade off: do the benefits outweight the risks? And for each of us, the answers are different.


Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 

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