Posted 1/15/2008 6:01 PM (GMT -6)
I've probably done around twenty courses of Pred and have hadd all the sidee effects except the hair loss. Weight gain and moonface are the ones that effect me every course.
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/propranalol


Posted 1/15/2008 6:09 PM (GMT -6)
MicheleV, Holy CRAP remission since 2004! end hijack

Many pred cycles only once did I gain wieght.
Never hair loss. Joint pain on or off pred so I do dnot know.
Moon pie face once. Clammy sweats yes every tine.
Fuzzy head pssied off at the world evry time.
Steriod raged aimed at Doctors twice.
I usually start at 80mg sometimes 60mg.
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
vitamins-veggie juice-wheat grass juice--fish oil
Started 1/01/08
Freindly bacteria:raw milk-kefir made with raw milk--natto--probiotic
Antifungus:Caprylicacid, Pau D Arco, Black walnut hull, Oregano oil
Anti inflammatory:fish oil  1/15/08 started Turmeric
1/10/08 Started healthy diet again.

Posted 1/15/2008 7:27 PM (GMT -6)
Joylu - I was on pred for a very long time and I didn't get any of the physical side effects you are speaking about. The combination of side effects differ greatly from person to person. It also depends on the dose and the length of time you are using it.

The side effects that I got were complete lack of libedo, mild depression and lack of emotion.
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage
    - 2xColazide, twice a day; 1x6-mp twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 2xScoop of Sustagen Sport per day;
    - 1xBIOCeuticals UltraBiotic 45 per day, 1xBIOCeuticals SB FlorActiv per day;
    - 1xHeaped teaspoon of Metamucil smooth orange powder 3 times a day.

Posted 1/15/2008 11:51 PM (GMT -6)
I had different/worse side effects this time I took it than I did the first time I took it, and the first time it was a higher dose and much longer period of time. This time, the highest dose I was on was 40mgs. I was starving all the time, sweating like crazy, aggresive/angry/moody, gaining weight, shaky, unable to sleep/ horrific nightmares. The first time all I remember was my face got big, acne, and I was moody.  I never noticed hair loss either time.

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm

Posted 1/18/2008 2:15 PM (GMT -6)
I've been on 20 mg for almost two weeks and while I haven't noticed any of the classic side effects yet (moonface, munchies, crazies, etc.). However, I have been having a really hard time focusing. I feel really fuzzy-headed, like when someone wakes you up in the middle of a deep sleep - only I feel that way all day. It's annoying, but I'm hoping the good will outweigh the bad. The jury's still out on whether or not it's helping. I've had less frequency and urgency the past few days, but I still have blood and mucous and I'm wondering if things are just moving slowly because I ate too much cheese pizza (so good, but so bad...).
Erin, 25

Dx with left-sided UC June 2007
Flaring since June 2007
Meds: Asacol 400 mg x 9; Prednisone 20 mg (since 01/09/08)
Supplements: Iron, Multivitamin, Fish Oil & Probiotic Yogurt
Dx with Depression, GAD, and OCD in 2001
Meds: Paxil Lexapro Zoloft 100 mg
Currently in therapy

Posted 1/18/2008 2:31 PM (GMT -6)
took a while for the pred to help me and yes I am super fuzzy headed, I can't think as clear as I normally do.

Also, too I have started stuttering sometimes, I stuttered up until 4th grade when I got help. I think it must be b/c of the pred (so I am predisposed I would guess) and the only other times I have stuttered since then is when I was really excited or angry and just tried to get some words out (very rarely) happened but it is happening more and more, but there is not much I can do, except wait for the pred to be over.

but we are all different and I am on a high dose for a long time.
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.

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