Side Effects & flares w/ Remi infusion

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heen
Regular Member


Date Joined Apr 2004
Total Posts : 256
   Posted 1/15/2008 10:33 PM (GMT -7)   
Hi all!  Just wanted to know what kind of or any side effects you may have after your infusions and seeing if anyone is similar. I get:
1) sleepy the day of 2) if flaring seems to get better the day after- symptoms get better or are gone 3) nasty gas for a few days (smells mediciney) 4) dry skin and itchiness at times.........the good points are my flares seem to be getting milder and the duration is shorter.  I can function and have more energy. 
 
If flaring and after the treatment, does anyone just let the remi take care of it or does anyone use ememas, or suppositories, etc??  Last time I flared right before my treatment and used suppositories. I felt better after treatment, but 4 days later it's back in the rectum area w/urgency to go and very little blood when I wipe..............I'm wondering if I should use enemas or see if remi takes care of it.  Been using bentyl and suppositories, which helps a little.  I'm just trying to use as little meds as possible.
 
 
Remicade- 7th infusion Jan 10,2008
Dx with UC In Mar 2004. Mainly Left sided, at times has skipped through the whole colon. Also have IBS.
50mgs of Imuran, Asacol 3/3x's day, Bentyl as needed
Holistic approach- supplements- fish oil, probotics, gut repair, allergy enzyme, paleofiber
 
 
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/16/2008 6:39 AM (GMT -7)   
Hi, I have Crohn's and have been on Remicade for over 2 years and I have no-side effects from the drug. I am also in remission from the drug. I have never had a flare after taking remicade.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


heen
Regular Member


Date Joined Apr 2004
Total Posts : 256
   Posted 1/16/2008 8:34 AM (GMT -7)   
That's great you haven't had any flares and been in remission. I feel like I'm getting to that point because each flare I've had is "better" than the last. It's still there though. Don't want to get my hopes up too high! For right now, I'll take and run with it! Thanks for the input! Glad you are doing well!
 
 
Remicade- 7th infusion Jan 10,2008
Dx with UC In Mar 2004. Mainly Left sided, at times has skipped through the whole colon. Also have IBS.
50mgs of Imuran, Asacol 3/3x's day, Bentyl as needed
Holistic approach- supplements- fish oil, probotics, gut repair, allergy enzyme, paleofiber
 
 
 

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