Does anyone keep a daily log?

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TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 1/16/2008 7:08 AM (GMT -7)   
Does anyone keep a daily log of bms, bleeding etc?  I started January 1st and wished I would of done it a long time ago!
Lori
38/F
lower left UC diagnosed 1991
Asacal, zoloft, levoxyl, prednisone 40m 30m, multi vitamin, Azathioprine 100m (started 1/9/08)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/16/2008 7:11 AM (GMT -7)   
I did that for years. When you're going 15-25 times a day, it's hard to keep track of. Now that I'm in remission I don't.

I also noted on it what I ate each day - helped me see over time which foods seemed to bother me.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/16/2008 7:13 AM (GMT -7)   
I also kept one. It depressed me but my GI wanted the information.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 1/16/2008 7:13 AM (GMT -7)   
yes, i wrote what I ate last night (rib crib) because the bleeding was slowing down but was worse again this morning...Im blaming it on rib crib!
Lori
38/F
lower left UC diagnosed 1991
Asacal, zoloft, levoxyl, prednisone 40m 30m, multi vitamin, Azathioprine 100m (started 1/9/08)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 1/16/2008 7:23 AM (GMT -7)   
If I notice anything off (mucous, blood, etc) I make a note in my daily planner.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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WhiteSox1
Regular Member


Date Joined Oct 2007
Total Posts : 135
   Posted 1/16/2008 7:36 AM (GMT -7)   
I do. I keep track of my bm's, medications I am on, the food I ate and a brief description of the day I just had. It's a good reminder to see how far I've come and where I'm headed.
Asacol 4 pills 3x's daily
Imuran 125mg.
Prednisone 15mg.
Multi-Vitamins
Calcium with Vit. D Tablets


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/16/2008 7:41 AM (GMT -7)   
For my first flare my doc asked me to keep one. I did - it was a calendar that I noted bms in the am, pm, and that woke me up at night. I also used it to note my pred doses, med changes, cramping, bleeding, etc. I also marked when I missed meds.

I used a "B" for lots of blood, a "b" for some blood, a "U" for urgency, a "C" for cramps. "L" for loose, and a plain tally mark for a bm that was "regular".

I would put a big star for good days. A smiley face for other good days. I would mark days I needed my pain killers with a PK.

It was interesting to see the correlations. My doc found it helpful too.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 1/16/2008 10:05 AM (GMT -7)   
no but I keep a notebook for my notes from my doc's and also put in info about about changes I notice, i.e. no blood since last week of Dec, no blood before that for two weeks.
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 466
   Posted 1/17/2008 3:53 AM (GMT -7)   
Believe it or not, I have kept a daily log of my BMs for the past 3 YEARS! I have been flaring the whole time and I keep a record of my meds too. I can then compare the 2 and try and make sense of this stupid illness. 
 
My ex partner saw me scribbling away after one of my BM's once and asked what I was doing.  When I explained he was in complete shock. He said he always thought I was catching up on work from the office when I was always dashing to the notebook LOL.
 
Back on Pred - 5mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 1/17/2008 7:49 AM (GMT -7)   
I started keeping a log of the frequency and amount of blood in December of 2005 because it was a requirement of a clinical trial I was in at the time. After the trial I went on Remicade and continued the log to help me keep track of how well it worked. I even started plotting the information on a graph starting in July of 2006. I have continued the graph up until now and I take it with me to every GI appointment. At a glance I can see trends. I also mark on the graph dates for each treatment or changes in medication.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 


shoegrl2
Veteran Member


Date Joined Nov 2005
Total Posts : 675
   Posted 1/17/2008 7:53 AM (GMT -7)   
Yes, I kept a detailed log for a long time, including foods that I ate. Now that I am on Remicade I only log the days that I am not doing well, this will help me and my Dr. see whether Remicade is losing its' efficacy on me.
Debbie
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva, align.  Remicade since Dec. 2005. www.myspace.com/dmbarris
 
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"
 

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