A TEENAGER WITH COLITIS

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honey bee 123
New Member


Date Joined Mar 2007
Total Posts : 19
   Posted 1/16/2008 8:32 AM (GMT -7)   
i am 17 years old and one day went to the doctors because i always got mouth ulcers like loads.Then he said that i might be enemic and i got lots of tests down and it showend that i was. I still went to the doctor for cheak ups to see how i was and i ended up telling him that i sometimes was bleeding from the back passage and that a lot of the time i was feeling very tired. the reason why i was not shocked when i started bleeding was because when i was 7 i had it and the doctor told me that i had an anal fisher that was a cut inside my passage which opened everytime i went to the loo and that it was just bleeding. Nothing ever happend and i just got use to it vbut as time went on it went away. but when it started again i thought i should say. he then started talking about inflamitary diseases which were things i had never heard of. i was sent to the hospital where i was cheaked with just a 10 cm scope that when up my rectom and was told i had chrons disease. i had never heard about it and looked up everything and was horrified. i was then sent a few months later for a sigmoidoscoapy (sorry about my spelling) where they then discovered that i had ulceritive colitis and he said that it was not half as a bad as chroms which made me feel relieved. then i was given pentasa which made me feel ill, then enamas and asacol. by this time the ulceritive colitis was at it peak and i thought that was the end of my life and would spend the rest of my life sitting ona toliet and feeling ill and never being able to go out, i was still at school and had a part time job three days a week a serious boyfriend and lots of friends. the first year was dreadful i was not allowed to sit my exams because i was of so much i lost contact with a lot of friends. it also changed my personality i was mad angry and said all the time, i took my ilness out on my family and my boyfriend who i have now lost but we are still best friends and i could not have got throguh this without him, i realised who my friends were after being diagnosed with uc and realised that my family were not as great as i thought they were. maby its just becasue people who do not have this disease have any clue what we have to put up with, its not just sitting on the loo it the pain the tiredness, no hope, sadness,bitterness and feeling very alone. but i think i am in remission now and i hope i am for a while im back and school doing better and hope to get all the people i lost back. i now look forward to my life even though there will be hard times and i might not think like this, but we all just have to remember we only live once and ilness or no ilness we have to live with what we have got and try to have the best time of our lifes not matter what my face us even if it is a load of crap xxx  


plus aloe vera juice

Post Edited (honey bee 123) : 1/16/2008 8:37:56 AM (GMT-7)


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 1/16/2008 9:00 AM (GMT -7)   
Welcome honey bee, I'm sorry you need to be here. You seem to have a good outlook now and that is so important. I was two years older than you when i was diagnosed and know how hard it was, i can't imagine being 17 and having to deal.

You do learn alot about who really cares about you though you need to keep an open mind. My dad has never seemed to care about my UC. He would never even read a pamphlet. Now that I have been dealing for so long he and i can talk about how it was back then. The reality was that he was too scared. He loves me so much that he couldn't face what I was going through, he wouldn't admit it though for a very long time.

I lost many friends as well beucase of this DD but I have found that the ones that are still here are the best ones in the world. They have been with me through everything, 15 years of friendship and they have no problems asking me how my poop is. How great is that? You have been through something that not many people your age go through. It has made you grow up fast. But you are not alone. There are more of us all the time. It can feel very lonely alot of the time but that's why we are here. We have all been there.

There are other teens on this site that i hope will chime in. I'm glad to hear you are feeling better now and ready to live life. Very inspiring. Good luck and welcome aboard.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/16/2008 3:26 PM (GMT -7)   
honey bee, Welcome to HealingWell! We're sorry you had to find us, but glad you did :) Unfortunately, we do have other teenagers as members. It's hard enough to have this disease as an adult - I can't imagine coping as a child or teen.

You're right - most people without this disease have NO CLUE what we go through! They have no idea at the kind of pain we deal with or the emotions we go through. That's why this forum is so great - everyone here understands!!!

Hope to see you around :)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 1/16/2008 3:41 PM (GMT -7)   
sorry you have to go threw this. and you are right most people just think ok so you have to potty 15 times a day, they dont understand the pain that goes along with it and that there is never a time that you leave the house without wondering where the restrooms are, or if you will be able to make it that far.but there is alot of people out there that is willing to learn, and try to understand why it makes us a little cranky. best of luck to you.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


sophia*
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/31/2008 2:55 PM (GMT -7)   
hi honey bee,

i'm also a new member and i'm also a teenager with uc. i'm 14. i know at the begining everything is hard but it'll get better you'll see.



sophia
diagnosed febuary 2007
prednisone 5mg
asacal 400mg

basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 1/31/2008 4:20 PM (GMT -7)   
Hey there Honey Bee! I was 16 when I was diagnosed (19 now) and believe me I went through everything you're dealing with now. However, it seems as though you've turned the corner and accepted that this is a part of your life now and that's really really good. Its hard to get over the shock factor of it all, especially when you're just a kid. I'm glad to hear you're doing better :)

Sam

Sam

Diagnosed in September 2004

Currently on...4800mg Asacol, 25mg Elavil, Ortho Tricyclen and some immodium

"If you don't like something, change it. If you can't change it, change your attitude"

Maya Angelou

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