anniow - welcome. sorry to hear of your daughter's troubles. I agree that probably jpouch.org would have more people with this kind-of experience. but, if you don't mind me asking, if the pouched failed again, could she have an ostomy bag instead of permanent TPN?
Pancolitis dx 3/07
9 Colazal a day (used to be on 12 Asacol, don't think Asacol helped)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.