MAD, very mad at the Arthritis assistant, I feel he caused my ER visit

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 1/16/2008 10:19 PM (GMT -7)   
So I went to the Arthritis Specialist today, told him the millions of aches and new pains I've been having since the last time I saw him 4 months ago. In November I went as a walk-in because the joint pain was really bugging me and saw the assistant.  Four days later I was in the E.R. because I could not stop the diarrhea since that day and also vomited after taking Cymbalta and was so worn out.  Soo, today the Specialist insists on giving me shots, I say wait a minute.  What ARE these shots?  I said tell me what they are, because last time I had one, I had non-stop diarrhea and ended up in the ER.  He said dont worry.  I said what shot was it last time, I dont want to risk it if you want to give me that shot I will not take it.  He looked it up, it was a high dose NSAID!!!!!!!!!!!!  @#$% I was so mad.  The doc insisted he give me shots of lidocane or something and "promised" it wouldnt make me flare and it wasn't the same thing.  GRRR when I think of that assistant knowing I have UC and giving me that shot, I get so angry.  Now I know to say Im allergic to NSAIDs but it still ticks me off!
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm


blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 1/16/2008 10:27 PM (GMT -7)   
That stinks. We rely on them knowing more then us but it just
doesn't always go that way. It must be hard to keep up with all thier patients but
I have grown to have slight trust issues with them threw the years.
Princesscolon I hope your colon gets back on track soon.
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
vitamins-veggie juice-wheat grass juice--fish oil
Started 1/01/08
Freindly bacteria:raw milk-kefir made with raw milk--natto--probiotic
Antifungus:Caprylicacid, Pau D Arco, Black walnut hull, Oregano oil
Anti inflammatory:fish oil  1/15/08 started Turmeric
1/10/08 Started healthy diet again.
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/17/2008 5:57 AM (GMT -7)   
Whenever I see a new doc or even existing ones, I say I'm allergic to anti-inflammatories and they mark it on the chart. But when they ask what reaction I get, I tell them that I don't have a REAL allergy - I just can't take them because of my Uc. But at least it's on my chart as a red flag.

That is what sort of happened when I had my last surgery. My GYN wanted to give me Toradol (IM) but I told him that I wasn't sure that was such a good idea since I have Uc. So I gave my GI a call and he said that one dose shouldn't hurt.......hmmm well, yes it did - I guess I am intolerant to ANY anti-inflammatory even in small doses because I got thrown into a massive flare. So not all doctors (or assistants) know everything so it's up to the patient to be their own advocate.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/17/2008 6:28 AM (GMT -7)   
Hey, Red, tell them you're allergic - NSAIDs give you bloody diarrhea. I recently told my GI's new PA that I'm allergic to Pred - it gives me dissolving bones.

Seriously, though, we do have to watch out for ourselves. The docs have become so specialized that they only keep up with their own field, and forget a lot of what they learned about others. So we've had to become careful consumers and partners in our care.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 1/17/2008 7:19 AM (GMT -7)   
The thing that irks me is that I had been telling the assistant all about my UC, he said he has a sister with it, he was asking me how many bms a day and said he really felt bad because it is so hard for his sis. Then when he said let me give you a shot to help the pain and I asked what it was, he said "something to help your joint pain" and then gave me the shot, now I know better. It was even hard to get the specialist to tell me what he was giving me, weird. I was like, what is it!?! TELL ME!
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 1/17/2008 7:27 AM (GMT -7)   
That sucks so bad!!! I don't trust anyone to prescribe anything anymore after a few near misses. Now I don't take anything without a call to the GI. I won't even switch birth control without letting him know. A patient should never have to beg to be told what is being given to them. Sounds a bit like assault.

I hope you feeel better soon!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08
Prontonix once daily for acid reflux, zofran twice daily for nausea


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/17/2008 8:21 PM (GMT -7)   
Can someone clear something up for me?? I thought NSAIDs and antibiotics aggrivated our diseases if they were took orally and that taking them IV or IM avoided that issue. Luckily I have never needed one IV or IM but is it more less likely to bother us than oral?
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 1/17/2008 8:33 PM (GMT -7)   
I would like this cleared up too, never thought of that. It was given to me in a shot. I wish I knew the exact name and doseage but the doctor was not very willing to share the info and just mumbled it quickly.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/17/2008 9:48 PM (GMT -7)   
princesscolon, you have a right to know what medication you're receiving and to be given information about it. Don't ever let anyone give you drugs without identifying them to you! If you don't know what they are, ask to see some information. It doesn't have to be confrontational, just "What are you going to give me?" "Oh, I never heard of that. Can you give me some information about it? How does it work? What are its side effects?"

If your doctor won't give you the name of a drug you were given and the dosage, request your medical records and look for a new doctor. The days when we just sat back and believed everything the doctor said and let him/her make all the decisions is long past.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 1/18/2008 7:50 AM (GMT -7)   
Supposedly Iv and Im will cause less upset, which is why my GI ok'd it for me. Then there are the exceptions of course. I typically can take 1 or 2 doses of an oral Nsaid before it makes me bleed, but I've had anti-inflammatories both Iv and Im and both of them brought almost instant bleeding.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Colocort, Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Allegra & Singulair
~Secondary Reynauds Syndrome - '04 - Norvasc~Fibromyalgia - '06~No meds
To help Healingwell - click here: DONATE
http://www.myspace.com/82595818
"The quality of my life depends on the quality of my thoughts."
 
 
 
 

 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 3:41 AM (GMT -7)
There are a total of 2,905,655 posts in 318,878 threads.
View Active Threads


Who's Online
This forum has 158236 registered members. Please welcome our newest member, rackfinity017.
206 Guest(s), 1 Registered Member(s) are currently online.  Details
Dimitri71