Tysabri approved for Crohns sufferers in Ireland

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barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 464
   Posted 1/17/2008 3:31 AM (GMT -7)   
FDA approves Tysabri
 
http://www.endonurse.com/hotnews/tysabri-crohns.html
Back on Pred - 5mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 1/17/2008 12:21 PM (GMT -7)   
Sounds good!
You could post that link on the CD board as well.
q
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 713
   Posted 1/17/2008 12:33 PM (GMT -7)   
Is this "Focus on Ireland" week or something? Not complaining. All exposure is good but don't come here looking for nice weather!!!!
800 mg Asacol a day
500 mg Asacol suppository now and then!
Fibre supplement, Iron supplment,Probioitcs
Balanced Diet, Reduced Stress
 
"There is no greater tragedy in life than doing nothing for fear of doing too little. May you live all the days of your life."
 
 
 
 
 
 
 


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 1/17/2008 12:34 PM (GMT -7)   
that's really interesting. Tysabri is a very controversial drug. very useful, but some potential significant risks. was pulled off market for awhile..... very interesting...
29/Female/NC
Pancolitis dx 3/07
9 Colazal a day (used to be on 12 Asacol, don't think Asacol helped)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 1/17/2008 12:51 PM (GMT -7)   
just to clarify, article said it's approved for use in US (which is why FDA approved it). just that one of the manufacturers is Irish.
29/Female/NC
Pancolitis dx 3/07
9 Colazal a day (used to be on 12 Asacol, don't think Asacol helped)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 4812
   Posted 1/17/2008 1:15 PM (GMT -7)   
They will never give it to someone with UC.... surgery is a much better alternative than the side-effects of Tysabri.

Tysabri was only approved for use in the most extreme cases of MS and Crohns.
http://www.webmd.com/ibd-crohns-disease/crohns-disease/news/20080114/fda-oks-tysabri-for-crohns-disease

There are only a few drugs on the market that have FDA black-box warnings and Tysabri is one of them....they will make you jump through hoops to get Tysabri.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (500 mgs)
Supplements:  None 
 


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 1/17/2008 1:46 PM (GMT -7)   
here is a bit more info, from the NYT
<http://www.nytimes.com/2008/01/15/business/15fda.html?_r=1&scp=2&sq=tysabri&oref=slogin>

Keith - I totally agree it would never be approved for UC, and likely shouldn't since we can have surgery. but since Crohnies can't have surgery as a cure, it may be a good option for them if their quality of life is totally shot.
29/Female/NC
Pancolitis dx 3/07
9 Colazal a day (used to be on 12 Asacol, don't think Asacol helped)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/17/2008 2:02 PM (GMT -7)   
We've been discussing it over at the CD forum...with some contraversy of course because of the very negative past history of this particular med....brain infection killing a few people...bad side effect, even though they are deeming it safe and put it back on the market who wouldn't be leary about it...although there is one poster over at the CD forum raving about their success with it.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 29859
   Posted 1/17/2008 9:44 PM (GMT -7)   
gulp....revised statement....sounds not so good!
q
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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