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disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 1/17/2008 1:12 PM (GMT -7)   
My doctor wants me to try Remicade infusion, via IV every 8 weeks.  On top of Asacol which I dont' believe works for me any more. 
 
has anyone here tried the Remicade infusions?

Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 1/17/2008 1:17 PM (GMT -7)   
I have been having Remicade infusions since July and they seem to be doing me some good, but I have not yet achieved a good remission. I believe I need to have the infusions closer to 6 weeks than 8 weeks, as between 4-6 weeks after the infusion I am starting to bleed again, and by the time i have the infusion have a lot of symptoms. I am still unable to get completely off the Prednisone, but working on it.

I have had no side-effects from the Remicade, the procedure is painless. Your immune system will be compromised so be meticulous about hand-washing, avoiding crowds, etc. I haven't had many problems with illness, but did get one sinus infection that hung on longer than it should have, but I did manage to get over it.

Meesh
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97;
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, was almost off, back to 40 mg; 12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran( 2/07)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/17/2008 4:54 PM (GMT -7)   
There are quite a few people here using Remicade. If you do a search, I'm sure you'll find a lot of discussions about it.

I've been on Remicade since March 2006. It finally put me in remission after years of constant flare. Like the other drugs we use, some are helped by it, some not. It's been great for me, and I haven't had problems with infections at all.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 1/17/2008 6:50 PM (GMT -7)   
I've been in remission from Remicade for about a year now
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
Eleventh Remicade infusion End of January


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 1/17/2008 9:20 PM (GMT -7)   
Well I was diagnosed back in 2005 but i had is for a year or two before I thought medical advice(which was stupid)

I am on Asacol all the time 12 pills a day, but the past 6 months or so it hasn't been working as well r IMO at all.

My doctor won't give my prediscone again even though it works well, and I don't really have any side effects for me outside of some back acne. I only take it in short rounds

He has had me on Entocort for the past two months, 3 pills a day. I went in complete remission but as soon as he cut the dosage down to 1 pill a day it came back almost immediately.

Now he wants me to do the Remicade.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 1/17/2008 9:36 PM (GMT -7)   
Your doctor is right in not wanting to leave you on steroids for an extended period. They can have very bad side effects, and are not recommended for long-term therapy. Plus, after a time they become less effective.

Have you tried Rowasa enemas? For many people, it helps to treat from both ends. The oral medications may not make it all the way to the sigmoid and rectum, and enemas can help in that area.

Other drugs that are frequently used are Colazal (instead of Asacol, works better for some) and Imuran. You may want to educate yourself about the choices - look in the reference section here - and talk with your GI about all of the options, pros and cons.

A good probiotic is a must for most of us, and others take various natural remedies. If you browse through this board you'll find a lot of discussion on this topic.

Persevere. Sometimes it just takes a while to find the right combination for your body.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 1/18/2008 7:28 AM (GMT -7)   
When I take the prediscone it has been for 1 month out of the year and it usually keeps for from flaring again for another year. I don't want to be bothered with going to get an IV every eight weeks, or anything else than involves alot of upkeep.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort

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