Asacol side effects???

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Mad2
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/17/2008 9:03 PM (GMT -7)   
Hello, I'm sorry to create another new thread having only posted here once (which was yesterday) but I'm reading this site here

http://www.askapatient.com/viewrating.asp?drug=19651&name=ASACOL

And I'm FREAKING OUT!!!! I just got diagnosed yesterday and my doctor put me on Asacol 3 pills 2 times a day. Some woman's husband died apparently from Asacol (she's the 2nd post down on that page) and there are TON'S of post's about people with hair loss. I'm 26 Male and I REALLY REALLY am concerned that might happen! There are also ALOT of posts about people's kidneys shutting down from Asacol. :(

Also I took my first 3 pills last night and when I woke up this morning I had a dull ache in my left elbow. I hadn't read anything about side effects at that point and I've never had an ache like that before. And as I'm typing this I'm noticing my right arm is starting to ache just a bit. I know that sounds like I'm just panicking (and I'am) but I've never felt that before.

I'm sorry to freak so much...but darn this is scary!!! I don't see my GI for another 2 weeks. I could call him again I guess. God this is horrible :(

disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 1/17/2008 9:23 PM (GMT -7)   
Everyone reacts differently I've been taking asacol since I was 28, 12 pills a day and have suffered no side effects, and still have my hair.

My issue is that is just stopped working after about 2 years.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


sodbuster19
Regular Member


Date Joined Sep 2007
Total Posts : 343
   Posted 1/17/2008 9:53 PM (GMT -7)   
I have been taking Asacol for almost 9 yrs and had no side effects. As for hair loss, I have been shaving my head for 10yrs, so I don't know about the hair loss. I do know that freaking out and adding stress won't help with keeping your hair!! Just relax, and just enjoy life everyday and I'm sure all will work out for you. Good luck

<FONT color=#0000ff>Bad flares Guniess & hot wings

6 Asacol 3pills 2 times a day
Acidophilus Probotic 3 times/day


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 1/17/2008 10:00 PM (GMT -7)   
You have to keep in mind that the people posting on those sites are the ones who had side effects. The majority of people (who didn't have side effects or who maybe had mild ones) probably wouldn't be posting there. Also - the nice thing about Asacol is that the medicine is specially coated to release when it hits your colon. That minimizes the potential for side effects and gets more of the medicine where it needs to go. Plus, the dosage you're on is very low. I'm on 12 Asacol/day (the max. dosage). I totally understand it's scary taking meds. I still don't like it, but it's better than being sick. I don't know how someone could die from Asacol...never heard of that before.

I doubt the medicine would have released into your system over night, b/c it has to make it all the way to your colon, so I doubt your elbow pain was from the Asacol. Sorry to hear you have it though. You could call your doctor if it doesn't go away or if you're really worried about it.
23 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D); fish oil


blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 1/17/2008 10:27 PM (GMT -7)   
From what I have read and what the Doc's tell me side effects from asacol are rare.
I have been taking every day for roughly 15 years and never had a reaction that I know about.
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
vitamins-veggie juice-wheat grass juice--fish oil
Started 1/01/08
Freindly bacteria:raw milk-kefir made with raw milk--natto--probiotic
Antifungus:Caprylicacid, Pau D Arco, Black walnut hull, Oregano oil
Anti inflammatory:fish oil  1/15/08 started Turmeric
1/10/08 Started healthy diet again.
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 1/17/2008 10:27 PM (GMT -7)   
Better a pain in the elbow than a pain in your butt. Your doc should have also put you on rectal 5ASA meds...retention enemas or even the suppositories (to start).

Be thankful......THANKFUL....your doc didn't put you on prednisone.

Ask your doc to do a basic kidney blood test in a month or so....just to ease your mind.

You don't have to take any meds if that makes you feel better....some don't.

I've taken 5ASA meds (asacol and Salofalk retention enemas) for 19 years....they're a miracle med from my perspective.

6 Asacol is good lower dosage to start on....I've been on that dosage for a very long time.

quincy
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/17/2008 10:56 PM (GMT -7)   
I had a severe allergic reaction to asacol after taking one dose of 4 pills, a few hours later I broke out into a full body rash along with a fever, sweating and chills as well as nausea...so strange things can happen even after only a few hours after taking it.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 1/18/2008 8:57 AM (GMT -7)   
which is one thing about an allergy....at least you know fairly quickly..unless it's your first exposure to the med.

q
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/18/2008 10:16 AM (GMT -7)   
Stop. Take a deep breath. Yes, it can be scary. I won't deny that. Freaking out won't help....

If you do have hairloss from Asacol, the hair usually grows back after your body adapts to the med. You can take Biotin (a B vitamin) to help with hair regrowth.

Unfortunately, you may notice more aches and pains. Those are sometimes a side effect of UC, sometimes a side effect of the med, sometimes a side effect of how you slept, or something else you did. Write it down, see how things go the next few days. If it becomes a constant thing, talk to your doctor.

I would suggest keeping a journal with symptoms, foods, etc to take with you to drs appts. Make sure to write down all of your questions! It's hard to remember them all - especially when you're new to UC and have so many.

I would also suggest reading "The First Year: Crohn's Disease and Ulcerative Colitis: An Essential Guide for the Newly Diagnosed" by Jill Sklar. A great over view by a person who has Crohn's.

Hang it there! We're here for you :)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


Donna Vojo
New Member


Date Joined Jan 2008
Total Posts : 10
   Posted 1/18/2008 11:12 AM (GMT -7)   
I just was taken off Asacol. It was making my hair fall out in chunks. This is such a nasty illiness, I feel your pain as I try to live with it. Please read my posts, I am trying to make a difference and help educate people what we go through.

Mad2
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/18/2008 1:49 PM (GMT -7)   
Thanks for all the responses. It's good to hear people who have taken this for such a long time and are still ok.

I called my GI doc today but he wasn't available. His assitant took my questions down and said he'll call over the weekend or Monday.

I had some water/blood come out this morning but my stool came out normal (which is hard and long for me) and she said that's most likely left over from the biopsy and all the laxatives from the colon prep on Tuesday/Wednesday or from my hemmroid. She said the doc didn't see any ulcers so it's most likely not from that piece of inflammed colon (last few inches to the exit hole).

MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 233
   Posted 1/18/2008 2:49 PM (GMT -7)   
Side effects are different from us all.

I have had great success with Imuran, but went 1/2 bald on Asacol and Rowasa. I have thick hair, so it wasnt obvious to others, but my hairdresser wouldnt cut my hair anymore. It was traumatizing her watching my hair come out in her hands in chunks.

BUT..it is just hair, and it does grow back. And this side effect is rare. I was added to the inserts on Rowasa since at that time, NOBODY was reporting hair loss. I happened to work at pharmacy, and I got some time with one of the reps. Soon after that, a little paragraph was added to the side effects mentioning hair loss.

My colitis (at that time) was very responsive to the medicine though..so it was definitely worth it. :-)
Currently in remission since September 2004!!!  I am on Imuran 150 mg and am LOVING life!


blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 1/18/2008 4:20 PM (GMT -7)   
To bad the hair loss did not effect everone.
I would have a laugh and give some to my wife
and watch her freak out. She is a tad paranoid about her hair falling out.
I know that would not be playing nice but she does have a great sense of humor.
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
vitamins-veggie juice-wheat grass juice--fish oil
Started 1/01/08
Freindly bacteria:raw milk-kefir made with raw milk--natto--probiotic
Antifungus:Caprylicacid, Pau D Arco, Black walnut hull, Oregano oil
Anti inflammatory:fish oil  1/15/08 started Turmeric
1/10/08 Started healthy diet again.
 


maud
Regular Member


Date Joined Jan 2008
Total Posts : 90
   Posted 1/18/2008 5:24 PM (GMT -7)   
first of all, yes asacol and prednisalone can cause hairloss, ive lost 50% of the thickness of mine since being on the meds, also untill you loose youre own hair you dont know how it feels, my child has lost 100% of hers- everycase is different and all very real, i cant see if anyone would loose there hair that it would be funny

UChick
Regular Member


Date Joined Jun 2006
Total Posts : 164
   Posted 1/19/2008 12:25 PM (GMT -7)   
The joint pain could be from the UC and not the Asacol. When I was in the hospital my GI always asked if I had any joint pains. If these type of pains continue I would contact your doctor just to be sure nothing is wrong. I haven't had any bad side affects from Asacol and have been on it for 6 years. I have gotten sore throats more easily than before my UC, but that's about it. I don't think I've read any posts about extreme hair loss from this drug on this forum before. Your on a lower dosage as well. I take double the amount you take and haven't had any problems at all. When I was first diagnosed I was on 3 pills 3xday and upped to my current 4 pills 3xday after my second flare. Is Asacol all your GI put you on? If it is that's good because it's a maintaince drug and probably the easiest pill to take because there isn't a bad taste to it.
Age 17

Diagnosed September '01
Remission since July '02

Asacol- 4 pills 3xday
Azathioprine- 75mg 1xmorning
Took Remicade 3 times, BIG FAN!!!!


keepholdingon
New Member


Date Joined Jan 2008
Total Posts : 2
   Posted 1/19/2008 10:11 PM (GMT -7)   
Asacol was the first med i was put on last summer when I was diagnosed and it was AWFUL... obviously it is on a case by case basis, but for me, it made me puke all the time and made me really sick and messed up my kidneys : ( Not a good experience...

maud
Regular Member


Date Joined Jan 2008
Total Posts : 90
   Posted 1/20/2008 3:20 AM (GMT -7)   
asacol is also very good for me, its thr pred that has caused the hairloss all being well, it also takes 3 months to come out of youre body x

Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 1/20/2008 4:56 AM (GMT -7)   
Hi Mad2 - for me, Asacol didn't work. It gave me worse D and made my colitis worse.

When your doctor prescribes you a new drug, go to wikipedia.com and search for it. Read up and understand the side effects.

In your case, here's an article on Asacol side effects and the chances of experiencing them.

My GI got my kidney function checked for the first few months I was on it and told me to keep an eye out for any of the side effects. Just monitor yourself and if something doesn't feel right, make sure the doctor KNOWS without any shadow of a doubt that there IS a problem. You know how your body should feel.

I moved from Asacol over to Colazide and that did the job for me. Its still a 5-ASA drug, its just delivered to the colon differently.
"We are dreamers, shapers, singers and makers..." - Elric, elder Technomage
    - 2xColazide, twice a day; 1x6-mp twice a day; 1xAbatacept 10mg/kg per month;
    - 1xZinc per day, 2xScoop of Sustagen Sport per day;
    - 1xBIOCeuticals UltraBiotic 45 per day, 1xBIOCeuticals SB FlorActiv per day;
    - 1xHeaped teaspoon of Metamucil smooth orange powder 3 times a day.

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