Well, I'd say first of all to be careful of your diet and try not to stress yourself out. You will find out exactly what's going on from the colonoscopy, don't jump to conclusions yet. I know how you feel exactly. I've had this since 15. I always have thought why me, why this stupid, embarrassing disease that most people don't understand?! Over time you figure out what you can and can't eat and other ways to help yourself. Don't feel stupid. It is hard to come out and ask for help with this. I was so embarrassed at first. LOL, first colonoscopy, there were so many people in the room, I was mad thinking why do all these people have to look up my butt? Now I could care less if the whole hospital comes in after so many times. It sounds like you are flaring up right now. I'd stick with the BRAT diet. Bananas, Rice, Applesauce (maybe not so much applesauce) and Toast or other light foods to keep your strenghth up. I drink Gatorade when I'm flaring, but I guess it has a lot of sugar and it might make some people worse. For me, I feel like it keeps me hydrated and gives me a little strength.
Let's see. The colonoscopy. To me, the prep is the worst because I get very nauseous and my rectum burns a lot after going to the bathroom so much and I get so weak. Bring a list of all meds you take (even tylenol and things like that) cause they need that info. Wear comfy sweatpants or something. Oh and wear a long pad and bring one too. In case of explosive gas from the prep and then after the test. Before the test they will out you to sleep and you'll probably wake up when it's over. Then you fart like crazy and may see mucus, water, and blood from the biopsies. My 1st one, they talked to me after I came to and I found out I had UC. This last time, I didnt talk to the doctor till a week later. You have to have someone drive you home and try to go to bed when you get home or eat something light and relax.
As far as medicine, noone can tell you for sure what will work for you personally. Prednisone should help and may be the quick fix they choose till they figure out what else will work for you. There are several types of pills and enemas and treatments depending on where the disease is in the colon/rectum or somewhere else if it is Crohn's. It takes time for most people to find the right medicine for them if they find one.
about losing weight, it depends on what medicines they put you on, how well they work for you, etc. Going to the ER... I am not sure. I guess if you feel extremely weak or feel you need to go because you cannot hold any food in for several days. I am really not sure because there are times I should have gone but didn't but made it through ok at home. Don't blame yourself, ok. And don't feel stupid. And it's normal to feel depressed. Try not to get too worked up though, it can make you worse. I hope the colonoscopy goes well.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm