I had been on the Asacol a few years and then it started to not work as well for me, I was stupid and didn't keep up my doctors appointments and tried to cure myself (kicking myself right now!). So, by the time I went back to my GI, I was flaring so badly and my ulcer had started tunneling from my rectum to my vagina. My GI said there was not enough time to take 6mp or anything since they take a while to kick in, and I started the Remicade right away to close the fistula. That is why I never took 6mp.
I think one of the hard things about your daughter's case is she is on so many things at once, it must be hard to tell what's working, and if any of the meds mare making her worse possibly. (The Canasa made me worse). What meds does she take at bed time, do you think they are causing her night-time bms (maybe the hydrocortisone enema at bedtime?)? I am sorry she has to go through this. Every day is different for me, but I do have normal days where I can function like a normal person. I truly appreciate those days.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm