asacol not working? couple of questions

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hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 1/20/2008 1:54 PM (GMT -6)   
I started taking asacol and it helped my some but didn't get rid of my flare so the doctor put me on entocort which got rid of the flare for about 20 days. I was perfect. Then out of nowhere I started having symptoms again. So the doc switched me to predisone which again got rid of the flare( and increased asacol). I am down to 25 mg switching to 20mg on Tuesday. I started having symptoms again yesteday which might have something to do with a couple glasses of wine on Friday night, but I'm still have blood and mucus and going every hour or two in the morning.(it settles down by afternoon.) I plan on waiting untill tommorow but then should I call the doctor again or should I wait longer? I have to start school back on tuesday...
What is my problem? I'm starting to think maybe the asacol is not as effective for me. Does anyone have advise on what to request from the doctor. Should I ask for another maintenance drug? I don't want my symptoms to get even worse.
I also have another question. I lost my colon pictures from the scope but if I recall I have it in patches over my whole colon except my rectum. The doctor did biopsys and said it was UC not crohns and he did check in my small intestine which had no inflammation. Is there a chance I could have crohns still and not UC? He said it was a mild case but it just seems different from what I have read/seem on this site.
Jessica 26/F
Asacol 3pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 30 mg currently)
Culturelle once daily/ three times a day
Tried (Entorcort EC 9ml/day)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 1/20/2008 2:53 PM (GMT -6)   
I don't see you on any rectal meds....why not?

You should discuss them with your doctor asap.

q
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/20/2008 3:13 PM (GMT -6)   
Hi hana,
there are some ppl whom have both Crohn's and Colitis. I myself have Crohn's. You can also post the same queston on the Crohn's forum.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 1/20/2008 3:52 PM (GMT -6)   
Heather,
I guess maybe the doctor didn't use them because I had inflammation in my whole colon(parts)? I might not understand it correctly but isn't the rectal meds the same medication but it focus on the end of you colon. I don't think I had any inflammation in my rectum so I have to take the pills anyway. I read that the rectal meds have less chance for side effects. Do you think I should wait out talking to my doctor? I guess I'm wondering if others kind of go in and out of remission and this is just the way it is going to be or if my medication should be tampered with. Also is it possible for me to have crohn's even if he took samples and said it was UC? I think he just looked in the last part of the small intestines.
Jessica 26/F
Asacol 3pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 30 mg currently)
Culturelle once daily/ three times a day
Tried (Entorcort EC 9ml/day)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 1/20/2008 9:48 PM (GMT -6)   
teddybearweiser said...
Hi hana,
there are some ppl whom have both Crohn's and Colitis. I myself have Crohn's. You can also post the same queston on the Crohn's forum.

That would be Crohn's colitis...but it's still Crohn's (in the colon).
 
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 1/20/2008 9:51 PM (GMT -6)   
hana24... I just read you mentioned where you don't have the inflammation..d'oh!

q
*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 1/23/2008 5:33 PM (GMT -6)   
Does anyone else have any suggestions? I stayed at 25 mg of prednisone and my symtoms seem to have calmed down but I am still going 5-6 times a day. I called the doctor and am waiting for a call back. I was thinking to ask to extended my tapers to 7 days and maybe up to 12 asacol. Has anyone been in a similar situation? I am scared to switch medicine as I started school today and I don't think I can go if it gets any worse. I did get through 4 hrs straight today without a bathroom. That really made by day!!
Jessica 26/F
Asacol 3pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 30 mg currently)
Culturelle once daily/ three times a day
Tried (Entorcort EC 9ml/day)


gaff
Regular Member


Date Joined Jul 2006
Total Posts : 442
   Posted 1/24/2008 9:59 AM (GMT -6)   
Try Colazal.  It breaks down lower in the colon because of the enteric coating.  ASacol needs a certain PH level to break down and therefore, sometimes doesn't break down at all and goes straight through the body.  I would also try Rowasa.

gaff
left-sided UC since 11/05
 Rowasa, Colazal, Calcium, Centrum
Natren Healthy Trinity Probiotics


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/24/2008 10:04 AM (GMT -6)   
Some people don't react well to Asacol. Interestingly enough, it can actually increase symptoms in some people. Side effects listed on WebMD:

Headache, vomiting, nausea, dizziness, weakness, upset stomach, diarrhea, or gas may occur. If any of these effects persist or worsen, tell your doctor or pharmacist promptly.

It's worthwhile to try a different ASA. I was switched from Asacol to the older drug, Azulfadine (Sulfasalazine), and have done really well on it. Keep in mind when you're really ill, it can take a while for the colon to heal, no matter what route you go. It took me over two years of trial and error with meds, diet, probiotics and other supplements to figure out what worked for me.

Regarding your diagnosis, after years of thinking I had UC, my diagnosis was in question recently. After some expensive blood tests, it was decided I probably DO have UC, yet I have "thickening of the bowel wall" on the right side, which is not typical of UC. So, cases are not always clear cut.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 1/24/2008 11:12 AM (GMT -6)   
Thank you for the ideas he made an appointment for me Friday yah
Jessica 26/F
Asacol 3pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 30 mg currently)
Culturelle once daily/ three times a day
Tried (Entorcort EC 9ml/day)

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