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Regular Member

Date Joined Jan 2008
Total Posts : 27
   Posted 1/21/2008 1:57 PM (GMT -6)   
Hi, I was wondering if anyone has had any success while being on a raw food diet? I want to make some big changes to my diet but am trying to figure out which way to go. I have read cases of raw foods curing people's colitis but it's hard to tell if it's true or if they are just trying to sell some product. Any info on this would be great! :)
Chris 21/M
Diagnosed Sept. 07
Salofalk 500mg plus nightly enema
Steroid enema
Fish Oil, Multivitamin
Status: 1-3 BMs a day. Each one D or lose and each one urgent!

Veteran Member

Date Joined Jan 2007
Total Posts : 1015
   Posted 1/21/2008 2:28 PM (GMT -6)   
Well for my body a raw food diet would kill me. Even when in remission i can only tolerate so much raw fruit or vegetables before i start having problems. Even some cooked vegies give me a problem. But it would depend on how your body reacts to food, we are all different.

I would be wary of anyone toting a cure, especially if they want you to pay for it. If it were a cure our docs, researchers, even media would be all over it.

Many people here have benefited from diet changes. Have you checked out the SCD diet? It didn't work for me but many stand by it.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 15 mg pred, down to 10 mg 1/11/08!
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08
Prontonix once daily for acid reflux, zofran twice daily for nausea

New Member

Date Joined Jan 2008
Total Posts : 6
   Posted 1/21/2008 2:47 PM (GMT -6)   
I am going through the same thing now and it sucks. I have been on a "special" diet for five days now, but still have to go but not as much. I tried organic green and still goes right through me.

potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 1/21/2008 3:05 PM (GMT -6)   
I cant eat anything raw even in remission, it hurts all the way threw, its like my body can no longer digest them, so I juice raw fruits and veggies.

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,

Veteran Member

Date Joined Nov 2005
Total Posts : 675
   Posted 1/21/2008 5:23 PM (GMT -6)   
I really have to watch the amount of raw fruits and vegetables that I consume. I can barely tolerate raw veggies and can only tolerate a few fruits in moderation. I could never make it on a raw foot diet as I get terrible left sided pain if I have too much raw. I do however try to stay organic and stay away from processed foods as much as possible. I have recently been making smoothies to try to increase my fruit and protein intake.
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva, align.  Remicade since Dec. 2005.
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 1/21/2008 5:50 PM (GMT -6)   
If it were me and I had troubles with raw food (fruits and veggies and such) then I'd wait until I was in full remission before dabbling with this kind of diet, only because so many IBDers tend to have difficulties with a raw food type diet consisting mainly of fruits and veggies.

I don't have issues with fruits and veggies regardless of the severity of my flare but I don't know if I would consider it because I think I would get bored with it and I think it's the type of thing that you're suppose to stick with indefinitely.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 1/21/2008 7:51 PM (GMT -6)   
The folks that tout raw food diets are sincere. They're not trying to sell you anything because they don't stand to benefit financially from you switching to raw food. However, raw food can be extremely tough on a compromised digestion, as you can tell from the posts above. Juicing is the only way you might get around this, but it's not something I've ever been willing to attempt.
Diagnosed with ulcerative colitis spring 1999
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.

Regular Member

Date Joined Jan 2008
Total Posts : 121
   Posted 1/21/2008 7:58 PM (GMT -6)   
Juicing made a difference in my UC. Before that my flares were next to impossible to control.
When guts are calmed down and simmering along sometimes I go on health kicks and try to eat
much raw. There is an adjustment period but it helps my uC. When in a flare the colon likes nothing and
I have no desire to eat veggies. All you need to go raw is a trip to the grocery store. I always try to keep it simple. Once you are in the groove it is easier then cooking.
Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day.
Pred for flares. I still have my colon THANK YOU GOD!!!
vitamins-veggie juice-wheat grass juice--fish oil
Started 1/01/08
Freindly bacteria:raw milk-kefir made with raw milk--natto--probiotics
Antifungus:Caprylicacid, Pau D Arco, Black walnut hull, Oregano oil
grape seed extract.
Anti inflammatory:fish oil  1/15/08 started Turmeric
1/10/08 Started healthy diet again.

Veteran Member

Date Joined Apr 2006
Total Posts : 733
   Posted 1/21/2008 8:17 PM (GMT -6)   
I am eventually going to see a nutritonist in my area who works with IBD patients and also regular people. I think this would be the safest route to go. I wouldn't try any fad things that are out there, too risky in my opinion.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: Remicade 700mgs every 6 wks (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm

Elite Member

Date Joined May 2003
Total Posts : 30984
   Posted 1/22/2008 1:06 AM (GMT -6)   
Canman, Well, food won't cure your UC....seems you should focus on maybe finding a more balanced food intake approach, one that gets you good nutrients, etc with some raw foods added to see how you do with them .

What changes were you wanting to make that you feel doesn't sit well with how you're doing?

*Heather*Status: mini flare Dec 28... increased enemas to nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Veteran Member

Date Joined Jul 2007
Total Posts : 714
   Posted 1/22/2008 11:41 AM (GMT -6)   

To give you a more balanced viewpoint food and diet have had a big factors in getting my UC under control. I don't use a raw food diet. I eat a blanaced diet and stay away from the foods that give me trouble namely sugar, red meat and carbonated drinks. Have they cured my UC? Probably not. But diet control and stress reduction have done more for me than the fumblers (ie the medical community) ever suggested.

Experiment. You've nothing to lose!

800 mg Asacol a day
500 mg Asacol suppository now and then!
Fibre supplement, Iron supplment,Probioitcs
Balanced Diet, Reduced Stress
"There is no greater tragedy in life than doing nothing for fear of doing too little. May you live all the days of your life."

Regular Member

Date Joined Apr 2006
Total Posts : 192
   Posted 1/22/2008 12:37 PM (GMT -6)   

I am actually trying the raw diet now.  I started it last thursday.  I have pain, a bit more than normal, and still going all the time, but what's new. 

One thing I have to say though is I feel great!  It's so weird, I have energy like crazy! So much more than before.  I don't know if its this or just some spunk flowing through me.  Also, I feel much more mentally altert.  I don't know if its going to help, but I'm going to try to try it for a couple weeks just to see. Nothing else seems to be working and I like the fact that its healthy.  Just my 2 cents.

Regular Member

Date Joined Jan 2006
Total Posts : 261
   Posted 1/23/2008 8:10 PM (GMT 0)   
You'd think raw food diet was bad for UC. But it's actually not so bad, even when you first start.

Yes, it passes through you. But after a few days you can almost time it when it will come out after you eat it. First part of the diet is all just juicy type of fruits, no roughage or veggies unless it's juiced. So it doesn't hurt your colon flowing through it. You get tons of energy even though when you try getting used to the diet it feels like you're starving (kind of hard to stick to the diet because of the first week hump of that starving feeling.)

If you're bleeding and want to get it under control, this diet seems to help for that. I know alot of people think "Oh man, this wouldn't work I can't digest that stuff" well obviously not, none of us can. But that's not the point. We can barely digest anything, so don't knock it till you try it out for atleast a week or two and see how much better you feel and how much less bleeding you have.

The first time I tried this diet I only tried it for a week and was too hungry so I gave in and had some sandwhiches and for the first day or so after that I had clean formed BMs. Took a day or so until it got messy again and started to have problems and going more often than just eating the stuff that passes through you.

So I can honestly say, if you want to try it. It's not nearly as bad as you would think, long term it could have a healing effect. I'm back on the diet for about a week and a half now. I'll be sure to make a topic after I give it a nice long run. The one good thing about the diet is you can eat all the dates you want for a meal :D Those things have alot of fiber so it gives you a longer time before it comes out.

Regular Member

Date Joined Jan 2008
Total Posts : 27
   Posted 1/23/2008 2:53 PM (GMT -6)   
Thanks guys, I guess I will just experiment and see how things go. My colitis isn't severe or anything. Certain raw vegetables tend to go right through me as well but maybe short term raw is bad but good long term. We shall see. I look forward to hearing updates from those who are trying a raw diet.
Chris 21/M
Diagnosed Sept. 07
Salofalk 500mg plus nightly enema
Steroid enema
Fish Oil, Multivitamin
Status: 1-3 BMs a day. Each one D or lose and each one urgent!

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 1/23/2008 5:56 PM (GMT -6)   
Just be careful with cabbage, especially raw, it's one of the hardest veggies to digest....can cause alot of gas because of this.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

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